Learn about relevant topics like research updates, clinical developments, tips for everyday living, managing symptoms, and many more.
Upcoming Webinars
Adult Siblings
January @ 8:30pm EST/7:30pm CST
This is for older teens and adult siblings of an adult with AS. Come connect with other adult siblings, learn about resources and future planning for your sibling with AS.
Angelman Syndrome 101 – for the Newly Diagnosed (or caregivers who need a refresher)
Date TBA
Learn about the resources available to you, genetics of AS, research concepts and advances you should be aware of, as well as be able to ask questions you may have as you begin your journey.
If you can’t make this one, AS 101 will be repeated later.
All Things AS on Facebook Live
Last Wednesday of the month at 7:30pm EST/6:30 CST
CEO, Amanda Moore chats with Angelman experts and advocates on Facebook Live.
Find details on the Events page.
Playlists by Topic
Educational webinars, conference sessions, interviews and more arranged in playlists by topic. Select a topic below to see a list of videos.
Clinician Chat with AS Experts
with Jessica Duis, MD; Ron Thibert, DO; Robert Carson, MD; Srishti Nangia, MD and Cesar Ochoa-Lubinoff, MD.
May 13, 2021
Angelman Research Happening Today
with Stormy Chamberlain, PhD; Mark Zylka, PhD; Ben Philpot, PhD; Jason Yi, PhD; Steven Gray, PhD; Eric LevinePhD.
February 24, 2021
Clinical Trials: All You Need to Know
with Elizabeth Berry-Kravis, MD, PhD; Wen-Hann Tan, MD; Jessica Duis, MD, MS; Cesar Ochoa-Lubinoff, MD, MPH;
January 25, 2021
Updates from Roche/Genentech on their Angelman Program and Upcoming Clinical Trial in Summer 2020
with Zeena Chi, Patient Advocacy Relations | Brenda Vincenzi, Ass. Medical Director | Shady Sedhom, Global Patient Partnership Director
June 11, 2020
Updates from Ovid Therapeutics on Neptune and Elara Clinical Trials
with Luke Rosen, Jeremy Levin, CEO and Amit Rakhit, MD, President
June 10, 2020
Windows into the Heart of Understanding
with Sharon Katz, FPMH-APRN, CRNP
December 9, 2015
Lizzie Sordia
November 24, 2015
with Eric Wright and Michelle Harvey
November 5, 2015
with Eric Wright and Michelle Harvey
September 28, 2015
with Lizzie Sordia
June 29, 2015
See a pdf of presentation with links.
Dr. Stormy Chamberlain
May 22, 2015
Dr. Stephen Calculator
April 20, 2015
Erin Sheldon
February 10, 2017
Erin Sheldon
Erin Sheldon
IEP and Angelman Syndrome
Dr. Eric Wright and Michelle Harvey
October 28, 2014
Guardianship
Dr. Eric Wright
November 18, 2014
Government Benefits to Support Community Inclusion and Improve Quality of Life
Dr. Eric Wright
August 28, 2014
Dr. Ron Thibert and Dr. Anna Larson
September 9, 2014
Erin Sheldon, M. Ed.
June 12, 2014
Download information from this webinar.
Erin Sheldon
June 25, 2014
Erin Sheldon, M. Ed.
May 5, 2014
Download handouts from this webinar.
Sybille Kraft-Bellamy
March 21, 2014
Dr. Justin Grill
April 16, 2014
Focus on Seizures & Low Glycemic Index Treatment (LGIT)
Dr. Ronald Thibert
February 20, 2014
Watch now
View the French translation of this webinar.
