Many topics. A lot to learn.

Educational Webinars

Learn about relevant topics like research updates, clinical developments, tips for everyday living, managing symptoms, and many more.

Upcoming Webinars

Angelman Syndrome 101 – for the Newly Diagnosed (or caregivers who need a refresher) 
Every other month on the third Tuesday @ 8pm EST/7pm CST
Register now

Learn about the resources available to you, genetics of AS, research concepts and advances you should be aware of, as well as be able to ask questions you may have as you begin your journey.
If you can’t make this one, AS 101 will be repeated later.

YouTubePlaylists by Topic

Educational webinars, conference sessions, interviews and more arranged in playlists by topic. Select a topic below to see a list of videos.

Adulthood

AS Clinics

Clinical Trials

Communication

Diet 
(LGIT/Keto)

Family Stories about their journey

IEP
(Individual Education Plan)

Instruction/Classroom

Long-term planning (finances, guardianship)

Products/Every Day

Research & Science

Seizures

Support

Symptoms, treatment & medical topics

ASF Walks
through the years

Recordings 

Dr Carson Movement Disorders in AS Research
Robert Carson, MD discusses his research on movement disorders and myoclonus in Angelman syndrome.

September 9, 2022

An Evening with UNC Chapel Hill
Meet Angelman researchers and clinicians from UNC Chapel Hill and hear about the work their doing to advance research and care of people with Angelman syndrome.

Ben Philpot, PhD | Mark Zylka, PhD | Liz Jalazo, MD | Margaret Deramus, MS, CCC-SLP | Mark Shen, PhD | Anne Wheeler, PhD | Jamie Capal, MD
May 4, 2022

Clinician Chat with AS Experts
with Jessica Duis, MD; Ron Thibert, DO; Robert Carson, MD; Srishti Nangia, MD and Cesar Ochoa-Lubinoff, MD.
May 13, 2021

Angelman Research Happening Today
with Stormy Chamberlain, PhD;  Mark Zylka, PhD;  Ben Philpot, PhD;  Jason Yi, PhD;  Steven Gray, PhD;  Eric LevinePhD.
February 24, 2021

Clinical Trials: All You Need to Know
with Elizabeth Berry-Kravis, MD, PhD;  Wen-Hann Tan, MD;  Jessica Duis, MD, MS;  Cesar Ochoa-Lubinoff, MD, MPH; 
January 25, 2021

Updates from Roche/Genentech on their Angelman Program and Upcoming Clinical Trial in Summer 2020
with Zeena Chi, Patient Advocacy Relations | Brenda Vincenzi, Ass. Medical Director | Shady Sedhom, Global Patient Partnership Director
June 11, 2020

Updates from Ovid Therapeutics on Neptune and Elara Clinical Trials
with Luke Rosen, Jeremy Levin, CEO and Amit Rakhit, MD, President
June 10, 2020

Windows into the Heart of Understanding
with Sharon Katz, FPMH-APRN, CRNP
December 9, 2015

Holiday Gift Guide
Lizzie Sordia
November 24, 2015
What To Do When You Disagree with the IEP 
with Eric Wright and Michelle Harvey
November 5, 2015
IEP’s are Really Important!
with Eric Wright and Michelle Harvey
September 28, 2015
Products and Services that may help everyday life with AS
with Lizzie Sordia
June 29, 2015
See a pdf of presentation with links.
Using induced pluripotent stem cells to study Angelman syndrome.
Dr. Stormy Chamberlain
May 22, 2015
Fostering and Improving Communication Skills in Individuals with AS
Dr. Stephen Calculator
April 20, 2015
PART 1 – Literacy Instruction in the Inclusive Classroom for Students with Angelman syndrome
Erin Sheldon
February 10, 2017
Part 2 – Literacy Instruction in the Inclusive Classroom for Students with Angelman Syndrome
Erin Sheldon
Communication Support in the Inclusive Classroom
Erin Sheldon

IEP and Angelman Syndrome
Dr. Eric Wright and Michelle Harvey
October 28, 2014

Guardianship
Dr. Eric Wright
November 18, 2014

Government Benefits to Support Community Inclusion and Improve Quality of Life
Dr. Eric Wright
August 28, 2014

Angelman Syndrome in Adulthood
Dr. Ron Thibert and Dr. Anna Larson
September 9, 2014
Writing Instructions for Students with Angelman Syndrome
Erin Sheldon, M. Ed.
June 12, 2014
Download information from this webinar. 
Reading and Writing at Home
Erin Sheldon
June 25, 2014
IEP Goals for Early Literacy Development for Students with Angelman Syndrome
Erin Sheldon, M. Ed.
May 5, 2014
Download handouts from this webinar.
Dr. Arthur Beaudet’s research with ASO’s and What it Could Mean for Angelman Syndrome

Dr. Arthur Beaudet
May 29, 2014
Read more about Dr. Beaudet’s ASF-funded research with ASOs.

Learn the ABC’s of the Low-Glycemic Index Treatment (LGIT) from a Mother and Expert
Sybille Kraft-Bellamy
March 21, 2014
Emergency Issues in Individuals with AS
Dr. Justin Grill
April 16, 2014
 

Focus on Seizures & Low Glycemic Index Treatment (LGIT)

Dr. Ronald Thibert
February 20, 2014

Watch now
View the French translation of this webinar.