Learn about relevant topics like research updates, clinical developments, tips for everyday living, managing symptoms, and many more.
Upcoming Webinars
Angelman Syndrome 101 – for the Newly Diagnosed (or caregivers who need a refresher)
Every other month on the first Tuesday @ 8:30pm EST/7pm CST
Register now
Learn about the resources available to you, genetics of AS, research concepts and advances you should be aware of, as well as be able to ask questions you may have as you begin your journey.
Playlists by Topic
Educational webinars, conference sessions, interviews and more arranged in playlists by topic. Select a topic below to see a list of videos.
ASF Strategic Plan
Amanda Moore discusses the future goals of the ASF and answers questions.
February 28, 2024
Strategies and Tips for Back to School
Staci Zimmerman, special education specialist from the ASF Clinic at Children’s Hospital Colorado discusses preparing for the upcoming school year.
August 9, 2023
Roche and Genentech Angelman Programs
Brenda Vincenzi, MD, Senior Medical Director for Roche, discusses Angelman syndrome and current and future Angelman trials and programs.
February 2, 2023
Dr. Carson Movement Disorders in AS Research
Robert Carson, MD discusses his research on movement disorders and myoclonus in Angelman syndrome.
September 9, 2022
An Evening with UNC Chapel Hill
Meet Angelman researchers and clinicians from UNC Chapel Hill and hear about the work their doing to advance research and care of people with Angelman syndrome.
Ben Philpot, PhD | Mark Zylka, PhD | Liz Jalazo, MD | Margaret Deramus, MS, CCC-SLP | Mark Shen, PhD | Anne Wheeler, PhD | Jamie Capal, MD
May 4, 2022
Clinician Chat with AS Experts
with Jessica Duis, MD; Ron Thibert, DO; Robert Carson, MD; Srishti Nangia, MD and Cesar Ochoa-Lubinoff, MD.
May 13, 2021
Angelman Research Happening Today
with Stormy Chamberlain, PhD; Mark Zylka, PhD; Ben Philpot, PhD; Jason Yi, PhD; Steven Gray, PhD; Eric LevinePhD.
February 24, 2021
Clinical Trials: All You Need to Know
with Elizabeth Berry-Kravis, MD, PhD; Wen-Hann Tan, MD; Jessica Duis, MD, MS; Cesar Ochoa-Lubinoff, MD, MPH;
January 25, 2021
Updates from Roche/Genentech on their Angelman Program and Upcoming Clinical Trial in Summer 2020
with Zeena Chi, Patient Advocacy Relations | Brenda Vincenzi, Ass. Medical Director | Shady Sedhom, Global Patient Partnership Director
June 11, 2020
Updates from Ovid Therapeutics on Neptune and Elara Clinical Trials
with Luke Rosen, Jeremy Levin, CEO and Amit Rakhit, MD, President
June 10, 2020
Windows into the Heart of Understanding
with Sharon Katz, FPMH-APRN, CRNP
December 9, 2015
Lizzie Sordia
November 24, 2015
with Eric Wright and Michelle Harvey
November 5, 2015
with Eric Wright and Michelle Harvey
September 28, 2015
with Lizzie Sordia
June 29, 2015
See a pdf of presentation with links.
Dr. Stormy Chamberlain
May 22, 2015
Dr. Stephen Calculator
April 20, 2015
Erin Sheldon
February 10, 2017
Erin Sheldon
Erin Sheldon
IEP and Angelman Syndrome
Dr. Eric Wright and Michelle Harvey
October 28, 2014
Guardianship
Dr. Eric Wright
November 18, 2014
Government Benefits to Support Community Inclusion and Improve Quality of Life
Dr. Eric Wright
August 28, 2014
Dr. Ron Thibert and Dr. Anna Larson
September 9, 2014
Erin Sheldon, M. Ed.
June 12, 2014
Download information from this webinar.
Erin Sheldon
June 25, 2014
Erin Sheldon, M. Ed.
May 5, 2014
Download handouts from this webinar.
Sybille Kraft-Bellamy
March 21, 2014
Dr. Justin Grill
April 16, 2014
Focus on Seizures & Low Glycemic Index Treatment (LGIT)
Dr. Ronald Thibert
February 20, 2014
Watch now
View the French translation of this webinar.