No matter where you are in your Angelman journey, the ASF is here for you. The ASF has been dedicated to supporting families for over 25 years. If you have questions, we have answers or know where to direct you for answers.
Below you will find groups and resources that have been created JUST FOR YOU – a caregiver to someone with AS.
ASF Family Resource Team
The ASF Family Resource Team, a group of experts in their respective fields of education, products for AS, insurance and medicare).
Each member of the team has a family member with Angelman syndrome.
ASF Family Champions
It’s important to connect with others who understand the joys and challenges of raising a child with AS. The ASF Family Champions are parents who have volunteered for others to reach out to ask questions, vent frustrations, share joys or just talk.
Counseling Services
The ASF offers counseling services at no charge to Angelman families in the United States for help with (but not limited to): caregiver stress, substance abuse issues, self-esteem concerns and more.
Join a Committee
Feeling like you want to get involved and do more for Angelman syndrome? Check out our list of committees and see if there is one that is right for you.
Send Encouragement
The ASF Care Committee can help brighten the day of individuals and caregivers living with Angelman syndrome.
Get Our Emails & Texts
The ASF keeps in touch via email newsletters and text. You can select the list options that are important to you.
Medical & Social Referrals
The ASF has partnered with Unite Us, to provide local referrals for medical and social service providers.
Checklists, Brochures and More Resources
As parents and caregivers of someone with Angelman syndrome, it’s important to educate yourself and others who are in contact with your child. Because AS is so complex and uncommon, you will hear the question, “what is Angelman syndrome?” often. Below, are some resources that you can download for your own use, or share with others who will be working with your individual.
Find more resources searchable by topic on the Resources page.
Newly Diagnosed
Things to help answer, “What is Angelman Syndrome?”
Video created by Roche
Worksheets For the Kiddos – great for classrooms
Tips & resources for those who care for an individual with AS
The Clinical Care Tool Kit includes:
- Overall Standards of Care
- Seizure Treatment Guidelines
- Management of Nonconvulsive Status Epilepticus
- General Anesthesia Best Practices
- Myoclonus in AS
- Physical Therapy and Occupational Therapy
- LADDER Learning Network
Therapy Best Practices
by Erin Sheldon M.Ed.
by Erin Sheldon M.Ed.
by Lizzie Sordia
AS in Adulthood
Let’s Be Friends
Follow us on social media! You will stay up-to-date on events and information, and interact with the worldwide Angelman community.