Find resources you need to navigate your journey with Angelman syndrome. Whether you are newly diagnosed or looking for ongoing support, you’ll find resources to assist every step of the way. Use filters to search by subtopics, life stage, or even location to find information.
Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.
Free. Making connections with others in the Angelman community can be very powerful and the ASF Family Champions are available for all of these reasons and more! These fellow AS family members have volunteered to be available to other families to share their knowledge, experience and lend an ear.
This series will empower you to take the first steps in building a Future Care Plan for your family. Featuring on-demand webinars, interactive resources, and Q&A opportunities. Complete the series to:
This series will empower you to take the first steps in building a Future Care Plan for your family. Featuring on-demand webinars, interactive resources, and Q&A opportunities. Complete the series to:
Tiny Superheroes created the Angelman Strong Badge as a symbol of strength, identity, and belonging for for the Angelman community. Visit their website to purchase a cape, the Angelman Strong patch, and many others. Use promo code ANGELMANSTRONG for 10% off.
Tiny Superheroes created the Angelman Strong Badge as a symbol of strength, identity, and belonging for for the Angelman community. Visit their website to purchase a cape, the Angelman Strong patch, and many others. Use promo code ANGELMANSTRONG for 10% off.
ASF Educational Webinar Series by Eric Wright. Discusses the concept of guardianship, particularly in the context of planning for individuals who may require assistance in managing their personal and financial affairs. It explores the responsibilities of a guardian, the legal processes involved in establishing guardianship, and considerations for families contemplating this option. The video aims to inform viewers about the implications of guardianship and alternative approaches to support decision-making for those with diminished capacity.
ASF Educational Webinar Series by Eric Wright. Discusses the concept of guardianship, particularly in the context of planning for individuals who may require assistance in managing their personal and financial affairs. It explores the responsibilities of a guardian, the legal processes involved in establishing guardianship, and considerations for families contemplating this option. The video aims to inform viewers about the implications of guardianship and alternative approaches to support decision-making for those with diminished capacity.
In this episode, Amanda sits down with Abby Zachritz, better known as Advocacy Abby, the Director of Family Advocacy at Support Now and creator of the Connect grants database. Abby shares how her personal journey as a mom navigating the disability world inspired her to help other families access financial assistance for therapies, adaptive equipment, and more.
Together, they discuss how Support Now’s all-in-one platform simplifies fundraising and connects families to thousands of verified grants, so no one has to face financial barriers alone. Whether you’re just beginning your journey or searching for better resources, this conversation is filled with encouragement, practical advice, and proof of the strength found in community.
In this episode, Amanda sits down with Abby Zachritz, better known as Advocacy Abby, the Director of Family Advocacy at Support Now and creator of the Connect grants database. Abby shares how her personal journey as a mom navigating the disability world inspired her to help other families access financial assistance for therapies, adaptive equipment, and more.
Together, they discuss how Support Now’s all-in-one platform simplifies fundraising and connects families to thousands of verified grants, so no one has to face financial barriers alone. Whether you’re just beginning your journey or searching for better resources, this conversation is filled with encouragement, practical advice, and proof of the strength found in community.
ASF CEO Amanda Moore talks with former Congressman Erik Paulsen, Chairman of the Institute for Gene Therapies, about how policy and advocacy are shaping the future of gene therapy for rare diseases like Angelman syndrome. They discuss the need for modernized healthcare policies, better access to treatment, and how collaboration across patient groups and policymakers can help make life-changing therapies available to all.
ASF CEO Amanda Moore talks with former Congressman Erik Paulsen, Chairman of the Institute for Gene Therapies, about how policy and advocacy are shaping the future of gene therapy for rare diseases like Angelman syndrome. They discuss the need for modernized healthcare policies, better access to treatment, and how collaboration across patient groups and policymakers can help make life-changing therapies available to all.
The Foundation for Angelman Syndrome Therapeutics (FAST) and the Angelman Syndrome Foundation (ASF) formed a strategic partnership to drive a coordinated, multi-tiered advocacy strategy to improve the lives of those affected by Angelman syndrome.
Both organizations understand the need to ensure key decision makers understand Angelman syndrome to influence and inform policy, legislation, and funding related to AS.
Please consider joining the AS Advocacy movement.
The Foundation for Angelman Syndrome Therapeutics (FAST) and the Angelman Syndrome Foundation (ASF) formed a strategic partnership to drive a coordinated, multi-tiered advocacy strategy to improve the lives of those affected by Angelman syndrome.
Both organizations understand the need to ensure key decision makers understand Angelman syndrome to influence and inform policy, legislation, and funding related to AS.
Please consider joining the AS Advocacy movement.
Fathers discuss everything there is to know about being a dad to a child with Angelman syndrome.
Fathers discuss everything there is to know about being a dad to a child with Angelman syndrome.
Features a collection of videos that delve into the latest scientific research and developments related to Angelman syndrome. The playlist includes presentations from experts in the field, covering topics such as genetic studies, clinical trials, and innovative therapies aimed at understanding and treating Angelman syndrome. This resource serves as a valuable tool for families, caregivers, and professionals seeking to stay informed about advancements in research and the potential implications for individuals affected by Angelman syndrome.
Features a collection of videos that delve into the latest scientific research and developments related to Angelman syndrome. The playlist includes presentations from experts in the field, covering topics such as genetic studies, clinical trials, and innovative therapies aimed at understanding and treating Angelman syndrome. This resource serves as a valuable tool for families, caregivers, and professionals seeking to stay informed about advancements in research and the potential implications for individuals affected by Angelman syndrome.
Angelman Syndrome Foundation hosts a webinar for Angelman caregivers to learn about Angelman syndrome, the research around it and supports that are available to help through the journey. This video is available for those who can’t attend the webinar in person or need a refresh on the information.
Angelman Syndrome Foundation hosts a webinar for Angelman caregivers to learn about Angelman syndrome, the research around it and supports that are available to help through the journey. This video is available for those who can’t attend the webinar in person or need a refresh on the information.
