Small commitment. Big impact.

ASF Committees

The ASF is very grateful to the volunteers who use their special talents or areas of interest to contribute to the Angelman community. 

Want to get involved?  Submit your information via the form below and you will be contacted by a committee member.  

Advocacy Committee - be their voiceThe ASF Advocacy Committee seeks to provide information to the AS community about important regulatory and legislative issues at both the state and federal levels that may have ramifications on the AS community.  Committee members will learn how they can advocate for positive change.

This committee will identify, consider and develop AS positions on long-term policy issues, and serve as a resource for legislators and their aides. This is a non-partisan committee that does not endorse any political candidate or party. 

Issues that impact the Angelman Syndrome community that the committee seeks help on are:

The committee is lead by Becky Burdine and Susan Ravellette. Expected commitment is approximately 5 hours per month. 

Open to new members

Sydney

The Adult Task Force helps develop ideas, educational pieces and materials that the ASF can provide to support adult individuals with Angelman syndrome and their caregivers.

Example: Checklist for touring day program and long-term care facilities to help families know what to look for and ask when touring day facilities or long term care.

This committee is lead by Lesley McCallister and Robin Wilkerson.  

Open to new members

Band and dancing at the 2019 ASF Family Conference    Just for moms group at the 2019 ASF Family Conference

This group helps plan and make decisions about the next ASF Family Conference to ensure that it is as fun as it is educational and transformational.

This committee is lead by Lesley McCallister.

This group has limited room for new members on subcommittees. 

ASF Care Committee

The ASF Care Committee is a group of parents, extended family members, friends and professionals who are passionate about outreach and support. Their goal is to brighten the day of individuals and families living with Angelman syndrome.

This committee is lead by Christie Gould. 

Open to new members

Know someone who could use some sunshine?

Fill out the request form below and the Care Committee will send them a card or special message. 

Interested in joining a committee? 

Fill out the form below and you will be contacted by a committee member. 

    *The ASF Family Conference Committe has openings on a few subcommittees.

Sunshine from the Care Committee Request

The Care Committee was created to bring a little sunshine and care to those in the Angelman community! Is there someone you know that could use a card or special message? Please fill out the form below and the Care Committee will work to bring them a little sunshine.
  • (in case we need to follow-up or have a question)