Angelman Syndrome Feature on CNN

CNN’s Jim Acosta invited ASF CEO, Amanda Moore, to discuss Angelman syndrome and the unique challenges faced by those with the diagnosis and their caregivers. We’re thrilled to have the opportunity to shine a spotlight on Angelman syndrome, amplifying awareness and potentially transforming the lives of those affected by this rare condition.

The Angelman Syndrome Foundation exists to help those with Angelman syndrome and their caregivers live better lives through Research, Clinical Care, Family Support and Educational Resources. 

Our work is dependent on support from the Angelman community and YOU. DONATE NOW

What is Angelman syndrome and the Angelman Syndrome Foundation?

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TESTIMONIALS

IN THE NEWS

Latest press releases, articles and announcements

August 12, 2024

Neuren Releases Results from Phase 2 Clinical Trial of NNZ-2591

Neuren Pharmaceuticals (ASX: NEU) today announced top-line results from its Phase 2 clinical trial of NNZ-2591 in children with Angelman syndrome (AS).  Highlights:  Clinician and caregiver global efficacy measures specifically designed for Angelman syndrome showed a level of improvement from […]

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July 17, 2024

Ultragenyx Announces Successful End-of-Phase 2 Meeting with FDA

Today, Ultragenyx Pharmaceuticals shared a press release announcing a “Successful End-of-Phase 2 Meeting with FDA for GTX-102 Angelman Syndrome Program.”  Read the full press release.   Livestream Update on Wednesday, July 24 Tune into the LIVESTREAM updates at the ASF Family Conference on […]

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