ASF Leadership

Board of Directors

Kathy Rokita Kathy Rokita Indianapolis, IN
Kathy Rokita President

Kathy is a principal at Somerset CPAs in Indianapolis, Indiana, where she focuses her expertise in their Healthcare practice. She became involved with the ASF after her son, Teddy, was diagnosed with Angelman syndrome in 2010. Kathy is co-coordinator of the ASF Walk Indianapolis and is active in several local professional and community organizations. Kathy resides in Brownsburg, Indiana with her husband, Todd and their two children, Teddy and Ryan.

Kathy Rokita is an independent voting member of the ASF Board. | Term Expiration: 2021

Kyle Rooney Twin Cities, MN
Kyle Rooney Vice President

Kyle Rooney and his wife, Shawna, are proud parents to three young children. Madden, was diagnosed with AS at six-months-old and since then, the family has been committed to finding the best care possible for him and other AS families.

In a short but very proactive time, the Rooney’s have done so much to raise AS awareness, help fund research and family support. In January 2016, Kyle led a team of climbers to the top of Mt. Kilimanjaro on behalf of all people with AS. #Summit4Angelman

Kyle is a division manager for the largest ophthalmic company in the world and oversees a sales force covering the upper Midwest. He’s been active in multiple charitable organizations for the last 10 years and has been fully committed to the ASF since Madden’s diagnosis.

Kyle Rooney is an independent voting member of the ASF Board. | Term Expiration: 2020 | kyrooney@gmail.com

Cecere Family Michael Cecere Kingston MA
Michael Cecere Treasurer

Mike Cecere and his wife Lori-an work in the Finance Industry for The Bank of New York Mellon and State Street Corporation respectively. They reside in Kingston, Massachusetts with their 3 children, Michael, Weston, whom was diagnosed with Angelman Syndrome in 2014, and Scarlett. Mike is active in both the local community and Angelman community. Locally he serves as co-chair of the Special Needs Parent Advisory Committee, as a baseball and soccer coach, and is a committee member of the integrated preschools’ accessible playground project. In the Angelman Community, he is the Boston ASF Walk coordinator. Mike graduated from Bryant University in 2003 with a BS in Finance and Suffolk University in 2011 with an MBA.

Michael Cecere is an independent voting member of the ASF Board. | Term Expiration: 2021

Bousum Family Tim Bousum Ipswich, MA
Tim Bousum Secretary

Tim Bousum works in specialty sales with AstraZeneca Pharmaceuticals. He and his wife, Maiya Dos, an architect with TriPyramid Structures, have two children: Cooper and Bode, who was diagnosed with Angelman syndrome in 2011. Residents of Ipswich, Mass., the Bousum family are active supporters of the Angelman Syndrome Foundation. Tim graduated from Lehigh University in 1994 with his bachelor’s in Biology.

Tim Bousum is an independent voting member of the ASF Board | Term Expiration: 2021 | timbousum@yahoo.com

Stormy Chamberlain Oxford, CT
Stormy Chamberlain SAC Chair

Stormy Chamberlain, Ph.D., is a widely published, 10-year researcher in the field of Angelman syndrome and UBE3A, who has given more than 30 talks and lectures about a variety of related topics. Dr. Chamberlain is currently an assistant professor in the University of Connecticut’s Genetics and Developmental Biology department, and is assistant director for UConn’s Graduate Program in Genetics and Developmental Biology.

Dr. Chamberlain established her own lab at UConn in 2009, using induced pluripotent stem cells (iPSC) to model and study human imprinting disorders, focusing on Angelman syndrome, Prader-Willi syndrome, and Duplication 15q syndrome. Her lab works closely with Dr. Marc Lalande’s lab and currently has two major on-going projects. She is also a frequent collaborator with other high-profile Angelman syndrome researchers. In addition to the ASF Scientific Advisory Committee, Dr. Chamberlain serves on the Dup15q Alliance Scientific Advisory Board and on the International Journal of Medical Genetics Editorial Board. Dr. Chamberlain earned her B.A. in Molecular Biology from Princeton University and her Ph.D. in Molecular Genetics from the University of Florida, and conducted post-doctoral work at the University of North Carolina and UConn Health Center.

Stormy Chamberlain is an independent voting member of the ASF Board | Term Expiration: 2020

Justin Grill Spring Lake, Ml
Justin Grill Past president

Justin Grill is a board-certified emergency medicine physician and covers three emergency rooms along Michigan’s Lake Michigan shore. Justin and his wife, Carrie, are parents to Noah, who is diagnosed with Angelman syndrome, and his siblings, Daniel and Hannah. The Grill family has been involved with the ASF since Noah’s diagnosis in 2011, and has held fundraisers in their hometown of Spring Lake, MI.

Justin Grill is an independent voting member of the ASF Board | Term Expiration: 2021 | jgrill32@yahoo.com

Dan Harvey San Diego CA
Dan Harvey Director

Dan Harvey was appointed to the ASF Board of Directors in 2012. He became involved with the ASF after his son, Matthew, was diagnosed with Angelman syndrome in 1996. Dan is the chief operating officer of Dart NeuroScience LLC, a pharmaceutical company focused on the discovery and development of innovative drugs with new mechanisms of action for the treatment of learning and memory disorders. Dan resides in San Diego, California with his wife, Karen, and has three children, Michelle, Jay and Matthew.

Dan Harvey is an independent voting member of the ASF Board | Term Expiration: 2021

Shannon Pruitt and family Shannon Pruitt Los Angeles, CA
Shannon Pruitt Director

Shannon, an entertainment industry executive, and her husband Scott, are parents to Emma, who is diagnosed with Angelman syndrome, and her twin brother Quinn, along with Mia. Shannon became involved with the ASF shortly after Emma’s diagnosis in 2012 when she and Scott turned to the ASF for information, engaging with ASF-funded researcher Dr. Ben Philpot and ASF Executive Director Eileen Braun.

Shannon Pruitt is an independent voting member of the ASF Board | Term Expiration: 2021 | spruitt6@gmail.com

Jim Kubicza Cheshire, CT
Jim Kubicza Director

Jim Kubicza and his wife, Jenn reside in Cheshire, CT with their two Children, Lincoln; 9 and Cole; 7. Jim works in sales and runs a direct-sales company from home with his wife. The Kubicza family became immediately involved in the Angelman community after Cole’s diagnosis in 2012. They volunteer their time at walks and fund raise for the Angelman community as well as reach out to newly diagnosed families to offer support. Jim has sat on the board for the CT Epilepsy walk and looks to continue his presence in the Angelman community with the ASF board.

Jim Kubicza is an independent voting member of the ASF Board | Term Expiration: 2020

Eric Wright Louisville, KY
Eric Wright Director

Eric Wright is a certified professional school counselor and education administrator with more than 20 years of experience. Eric and his wife, Debbie, are parents to 11 year-old Elsie, who is diagnosed with Angelman syndrome, and her siblings, 14 year-old Ella and eight-year-old Ethan. The Wright family has been involved with the ASF since Elsie’s diagnosis in 2008, and Eric has participated as a member of the Family Resource Team, biennial conference planning team, and currently as the Louisville ASF walk coordinator.

Eric Wright is an independent voting member of the ASF Board | Term Expiration: 2020 | squidwright@twc.com

Anna Blanding Hamden, CT
Anna Blanding Director

Anna Blanding is founder and principal of The Pilliner Group, LLC, a firm providing investment services to foundations and endowments and strategic management services to nonprofits. Prior to this, Anna worked in the investment offices of Choate Rosemary Hall, a boarding school, and The Annie E. Casey Foundation, a national multibillion dollar foundation. She has experience working across all public and alternative asset classes with particular expertise in venture capital, private equity and real estate. She also has a passion for social impact investing, investments that have a financial as well as social return. Prior to her career in asset management, Anna worked in philanthropy and policy. Anna has her undergraduate degree and MBA from Yale University. Anna and her husband, Garfield Pilliner, a high school vice principal, live in Connecticut. They have a son, Daniel, and their angel, Gabrielle, who was diagnosed with Angelman Syndrome in 2016. They quickly became involved in the AS community and are passionate about supporting research into treatments and a cure for Angelman Syndrome.

Anna Blanding is an independent voting member of the ASF Board | Term Expiration: 2020 | ajblanding@gmail.com

Rebecca Burdine Princeton, NY
Rebecca Burdine Director

Burdine is a parent to a child with Angelman Syndrome. She first served on the ASF scientific advisory committee in 2007 by invitation from Dr. Joe Wagstaff. She has previously served as Chief Scientific Officer for the Pitt-Hopkins Research Foundation and for the Foundation for Angelman Syndrome Therapeutics. She is currently serving on the steering committee for the Angelman Syndrome Natural History study and on the Clinical Trial Steering Committee for the STARS and NEPTUNE studies conducted by Ovid Therapeutics.

Rebecca Burdine is a faculty member in the Department of Molecular Biology at Princeton University and also serves on the ASF Scientific Advisory Committee.

Rebecca Burdine is an independent voting member of the ASF Board | Term Expiration: 2021 | rburdine@Princeton.edu

Lesley McCallister Charleston, WV
Lesley McCallister Director

Lesley McCallister is the proud sister of Kate McCullough, who was diagnosed (del +) with Angelman Syndrome in February 1989. Lesley’s family has been involved with the Angelman Syndrome Foundation since its inception. She has been a frequent volunteer and speaker on sibling issues and panels at past ASF family conferences, and brings the perspective of a sibling to an adult with AS to the Board.

Lesley graduated from Washington University in St. Louis in 2003 with a bachelor’s degree in Political Science and earned a Master’s degree in Journalism from Northwestern University in 2005. She is currently a stay-at-home mom to her elementary-aged children Luke and Lydia, while juggling multiple volunteer leadership roles in her community. Lesley, her husband Drew and children reside in Charleston, WV.

Lesley McCallister is an independent voting member of the ASF Board | Term Expiration: 2021 | lkmcc526@hotmail.com

Susan Ravellette San Diego, CA
Susan Ravellette Director

Susan Ravellette, Director
Susan Ravellette and familySusan is an attorney who specializes in civil rights cases and resides in San Diego, California. Susan and her husband, Steve, are parents to Ryan, who was diagnosed with Angelman Syndrome in 2003, and his younger sister Sarah.

The Ravellette family have been active members of the ASF community since Ryan’s diagnosis including holding fundraisers for Angelman Syndrome studies at Rady’s Children’s Hospital, as well as being local points of contact for newly diagnosed families in the Southern California area. Susan previously sat on the ASF Board of Directors for nine years, as both a Director and member of the Executive Committee, and served as an ASF Walk Coordinator in San Diego for seven years. Susan is a graduate of the University of California, Irvine and the University of San Diego School of Law.

Susan Ravellette is an independent voting member of the ASF Board | Term Expiration: 2021 | sravellette@gmail.com

Jim Lamb Stow, MA
Jim Lamb Director

Jim is a retired pharmaceutical executive with extensive experience in senior management, marketing and sales. Following his retirement he worked with several nonprofit organizations in business development and building capacity. The past 12 years were with an organization called SARAH, which provided programs and services for individuals with intellectual and other disabilities. Jim has served on numerous boards including Big Brothers, Big Sisters, Shoreline Chamber of Commerce and SARAH, Inc. Jim also coaches high school basketball.

Jim and his wife, Lynne are grandparents to Wyatt and Emmett. Emmett is now 12 years old and was diagnosed with Angelman syndrome when he was two years old. Emmett is full of joy, always with a smile on his face and is known as the “Major” at his school. He and his brother Wyatt are best friends

Jim and Lynne recently relocated from Connecticut to Stow Massachusetts where they can be more a part of their family’s life. Jim and Lynne have been active supporters of the Angelman Syndrome Foundation since Emmett’s diagnosis.

Jim Lamb is an independent voting member of the ASF Board | Term Expiration: 2021