Kyle Rooney and his wife, Shawna, are proud parents to four young children. Madden was diagnosed with AS at six-months-old and since then, the family has been committed to finding a cure and the best possible care for Madden and other AS families.
In a short but very proactive time, the Rooney’s have done so much to raise AS awareness, help fund research and family support. In 2016, Kyle led a team of climbers to the top of Mt. Kilimanjaro on behalf of all people with AS and continues to leverage his love for endurance sports and adventure to bring awareness and fundraising dollars to ASF. #Summit4Angelman
Kyle is a division manager for the largest ophthalmic surgical company in the world and oversees a sales force covering the upper Midwest. He’s been active in multiple charitable organizations for the last 10 years and has been fully committed to the ASF since Madden’s diagnosis.
Kyle Rooney is an independent voting member of the ASF Board. | Term Expiration: 2025
Mike Cecere and his wife Lori-an work in the Finance Industry for The Bank of New York Mellon and State Street Corporation respectively. They reside in Kingston, Massachusetts with their 3 children, Michael, Weston, whom was diagnosed with Angelman Syndrome in 2014, and Scarlett. Mike is active in both the local community and Angelman community. Locally he serves as co-chair of the Special Needs Parent Advisory Committee, as a baseball and soccer coach, and is a committee member of the integrated preschools’ accessible playground project. In the Angelman Community, he is the Boston ASF Walk coordinator. Mike graduated from Bryant University in 2003 with a BS in Finance and Suffolk University in 2011 with an MBA.
Michael Cecere is an independent voting member of the ASF Board. | Term Expiration: 2025
Eric Wright is a certified professional school counselor and education administrator with more than 20 years of experience. Eric and his wife, Debbie, are parents to 11 year-old Elsie, who is diagnosed with Angelman syndrome, and her siblings, 14 year-old Ella and eight-year-old Ethan. The Wright family has been involved with the ASF since Elsie’s diagnosis in 2008, and Eric has participated as a member of the Family Resource Team, biennial conference planning team, and currently as the Louisville ASF walk coordinator.
Eric Wright is an independent voting member of the ASF Board | Term Expiration: 2023
Lesley McCallister is the proud sister of Kate McCullough, who was diagnosed (del +) with Angelman Syndrome in February 1989. Lesley’s family has been involved with the Angelman Syndrome Foundation since its inception. She has been a frequent volunteer and speaker on sibling issues and panels at past ASF family conferences, and brings the perspective of a sibling to an adult with AS to the Board.
Lesley graduated from Washington University in St. Louis in 2003 with a bachelor’s degree in Political Science and earned a Master’s degree in Journalism from Northwestern University in 2005. She is currently a stay-at-home mom to her elementary-aged children Luke and Lydia, while juggling multiple volunteer leadership roles in her community. Lesley, her husband Drew and children reside in Charleston, WV.
Lesley McCallister is an independent voting member of the ASF Board | Term Expiration: 2021
Susan Ravellette, Director
Susan Ravellette and familySusan is an attorney who specializes in civil rights cases and resides in San Diego, California. Susan and her husband, Steve, are parents to Ryan, who was diagnosed with Angelman Syndrome in 2003, and his younger sister Sarah.
The Ravellette family have been active members of the ASF community since Ryan’s diagnosis including holding fundraisers for Angelman Syndrome studies at Rady’s Children’s Hospital, as well as being local points of contact for newly diagnosed families in the Southern California area. Susan previously sat on the ASF Board of Directors for nine years, as both a Director and member of the Executive Committee, and served as an ASF Walk Coordinator in San Diego for seven years. Susan is a graduate of the University of California, Irvine and the University of San Diego School of Law.
Susan Ravellette is an independent voting member of the ASF Board | Term Expiration: 2021
Jim is a retired pharmaceutical executive with extensive experience in senior management, marketing and sales. Following his retirement he worked with several nonprofit organizations in business development and building capacity. The past 12 years were with an organization called SARAH, which provided programs and services for individuals with intellectual and other disabilities. Jim has served on numerous boards including Big Brothers, Big Sisters, Shoreline Chamber of Commerce and SARAH, Inc. Jim also coaches high school basketball.
Jim and his wife, Lynne are grandparents to Wyatt and Emmett. Emmett is now 12 years old and was diagnosed with Angelman syndrome when he was two years old. Emmett is full of joy, always with a smile on his face and is known as the “Major” at his school. He and his brother Wyatt are best friends
Jim and Lynne recently relocated from Connecticut to Stow Massachusetts where they can be more a part of their family’s life. Jim and Lynne have been active supporters of the Angelman Syndrome Foundation since Emmett’s diagnosis.
Jim Lamb is an independent voting member of the ASF Board | Term Expiration: 2021
Pete and his wife, Sepi live in Fort Worth, TX and are proud parents to their daughter, Leila. Pete currently serves as Vice President of Strategic Partnerships at 2e Creative, a marketing firm focused on the advancement of global healthcare brands. Pete brings 17 years of healthcare experience spanning the pharmaceutical and medical device sectors. Pete’s passion for AS began several years ago when he embarked on a journey to climb Mt Kilimanjaro while raising awareness with current ASF Vice President, Kyle Rooney.
Pete England is an independent voting member of the ASF Board | Term Expiration: 2022
Shannon Moyer and his wife Stephanie reside in Downingtown, Pennsylvania and are parents to three boys, Colin, Trent, and Grant. Their oldest, Colin, was diagnosed with Angelman Syndrome when he was 18 months old. Shannon and Stephanie have been involved with ASF for many years, regularly participating in and fundraising for the Philadelphia area ASF Walk.
Shannon stays busy with his sons' various sports and activities, including taking Colin to his favorite activity, swimming. Shannon has coached soccer in the local youth sports association.
Shannon is a graduate of Syracuse University and The George Washington University Law School and is Managing Associate General Counsel with Qurate Retail Group.
Shannon Moyer is an independent voting member of the ASF Board | Term Expiration: 2022
Rebecca Burdine is a faculty member in the Department of Molecular Biology at Princeton University. Her lab focuses on understanding the mechanisms that control left-right patterning and asymmetric organ morphogenesis, and work to develop models to study rare disorders. She was named the 44th Mallinckrodt Scholar for the Edward Mallinckrodt Jr. Foundation and received a Scientist Development Career Award from the American Heart Association in 2003. She served as a National Academies Education Fellow (2013-2014) and Mentor (2016-2017) and was elected as fellow to the American Association for the Advancement of Science (AAAS) in 2018. She is on the Editorial board for Cell Reports and Zebrafish, and regularly serves on grant review panels for the NIH and NSF.
Dr. Burdine is a parent to a child with Angelman syndrome. She first served on the ASF scientific advisory committee in 2007 by invitation from Dr. Joe Wagstaff. She previously served as Chief Scientific Officer for the Pitt-Hopkins Research Foundation and for the Foundation for Angelman Syndrome Therapeutics. She also served on the Clinical Trial Steering Committee for the STARS and NEPTUNE studies conducted by Ovid Therapeutics.
Rebecca Burdine is an independent voting member of the ASF Board | Term Expiration: 2021
Kathy is a principal at Somerset CPAs in Indianapolis, Indiana, where she focuses her expertise in their Healthcare practice. She became involved with the ASF after her son, Teddy, was diagnosed with Angelman syndrome in 2010. Kathy is co-coordinator of the ASF Walk Indianapolis and is active in several local professional and community organizations. Kathy resides in Brownsburg, Indiana with her husband, Todd and their two children, Teddy and Ryan.
Kathy Rokita is an independent voting member of the ASF Board. | Term Expiration: 2021
Dan Harvey was a member of the ASF Board of Directors from 1997 to 2001 and from 2012 to 2020 and is currently a non-voting consultant to the Board. He became involved with the ASF after his son, Matthew, was diagnosed with Angelman syndrome in 1996. From 2009 to 2018 Dan was the Chief Operating Officer of Dart NeuroScience LLC, a pharmaceutical company focused on the discovery and development of innovative drugs with new mechanisms of action for the treatment of learning and memory disorders. He is currently the Vice President of Operations at Alume Biosciences where he is involved in the design and development of nerve imaging agents. Dan resides in San Diego, California with his wife, Karen, and has three children, Michelle, Jay and Matthew.
Dan Harvey is a non-voting consultant to the ASF Board