With Angelman syndrome comes some unique and challenging behaviors and increasing anxiety. The ASF is happy to offer assistance and information about dealing with and understanding these behaviors, free of charge.
The following behavior resources are not intended to replace efforts already in progress with doctors and/or therapists; rather, to provide supplementary information and further assist with understanding the complex factors that result in these behaviors.
Behavior Consultation
Dr. Christoper Keary can provide a one-time 45 minute phone consultation for families dealing with challenging behavior who are unable to travel to his outpatient clinic in Massachusetts for ongoing care. This consultation may include discussion with your local physician or therapist.
Christopher Keary, MD is the Behavioral Director of the MGH Angelman Syndrome Clinic and the psychiatric consultant for various specialty clinics at MGH. He is a child, adolescent and adult psychiatrist with a specific interest in the care for individuals with developmental disabilities including Angelman syndrome.
See Dr. Keary in Lexington, MA
Dr. Keary sees patients for ongoing care including in person evaluation of behavior and subsequent treatment recommendations at his outpatient clinic located in the Lurie Center at Massachusetts General Hospital for Children in Lexington, Massachsuetts. Virtual visits can be made for families living in Massachusetts or New Hampshire. Referrals can be made by calling 781-860-1700.
Request Behavior Consultation
If you are outside Massachusetts/New Hampshire and would like to request a consultation with Dr. Keary, please complete the Behavior Consult Submission Form below. Please allow 7 buisness days for a response.
Behavior Training Series
The Angelman Syndrome Behaviors Informational Series is available to help explore the possible root causes of challenging and aggressive behaviors and identify possible solutions.
Modules in the Series
1. Social and Environmental Influences on Aggressive Behavior
2. Aggression as Communicative Behavior
3. Cognitive Issues and Sensory Impairments
4. Mental Health Influences on Aggressive Behavior
5. Neurologic and Medical Influences on Aggressive Behavior
This project was funded by the Canadian Angelman Syndrome Society (CASS) and the Angelman Syndrome Foundation (ASF), and developed by the ASF. CASS and ASF welcome any feedback from users regarding your experience in using the series. Contact the ASF at 800-432-6435 or CASS at 403-931-2415.