2021 ASF Family Conference

Thank you to everyone who attended the 2021 ASF Family Conference & Research Symposium!

We had over 803 people attend from 23 different countries and 42 expert speakers!

 

Save the Date for 2022! 

ASF Family Conference
August 2-5, 2022
Kalahari Resort in Round Rock, Texas
(just outside Austin)

ASF Virtual Family Conference

Session Recordings

Welcome and What’s Happening at the 
2021 ASF Family Conference

Pharma & Biotech Industry Updates

Clinical Trials in Angelman Syndrome
Panel Discussion

Developing Therapies for AS
Panel Discussion

Medical Care for All Ages
Panel Discussion

Behavior and Anxiety in AS
Panel Discussion

Seizures in AS with Ron Thibert, DO, MsPH

Angelman Siblings
Panel Discussion

Genetics of AS 101 & 102
with Becky Burdine, PhD

Advice for Newly Diagnosed
with Liz Jalazo and Kathryn Ely

Diet and Angelman Syndrome
with Heidi Pfeiffer, RD

Communication and Angelman Syndrome
Panel Discussion

Sleep and Angelman Syndrome
with Dr. Jane (Zheng) Fan and Amanda Tourjee, RN

IEPs and Angelman Syndrome
with Michelle Harvey-Martin, M.Ed, BCBA

Insurance Waivers and AS – Community Alternatives
with Eric Wright, Ed. D.

Communication Basics
with Tabi Jones-Wohleber, SLP

Financial Planning Q & A
with Mary Anne Ehlert, CFP

This is a Q & A session about information shared in 5 informational videos.

That’s a Wrap!
Messages from ASF and FAST leaders.