FIND AN ASF CLINIC
Clinics give patients unprecedented access to the highest quality, evidence-based medical care, customized to their needs. Visit one of our worldwide locations.
13123 East 16th Avenue
Aurora, CO 80045
Specialties:
Genetics, Neurology, Developmental Pediatrics, Diet and nutrition, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work, Speech Therapy
TO MAKE AN APPOINTMENT:
Christina Gross, RN
Chromosome15Clinic@childrenscolorado.org
New patients can call, email or complete the New Patient Form, to initiate scheduling process.
Notes: A referral may be required for insurance purposes.
Referrals can be faxed to (720) 777-7974.
300 Longwood Avenue
Boston, MA 02115
Specialties:
Neurology, Developmental Pediatrics, Psychology, Sleep, Gastroenterology, Orthopedics
TO MAKE AN APPOINTMENT:
Lotus Lichty
Lotus.Lichty@childrens.harvard.edu
CLINICAL TRIALS:
Ionis Halos
Contact: Monica Ciaffi- Monica.Ciaffi@childrens.harvard.edu
120 Hamm Drive
Lewisburg, PA 17837
Specialties:
Developmental Assessments, Psychological and Educational Testing, Genetic Counseling, Medication Management, Neurology, Behavior
TO MAKE AN APPOINTMENT:
Becky Smith
(570) 522-9430rsmith6@geisinger.edu
200 First Street SW
Rochester, MN 55905
Specialties:
Clinical Genomics, Epilepsy, Sleep, Speech Therapy, Behavior, Physical Medicine
TO MAKE AN APPOINTMENT:
Central Appointment Office: (507) 284-8198 | (507) 266-7472
Referring Physicians: (800) 533-1564 or refer a patient here.
Appointments take place mostly in one building.
3100 S.W. 62nd Ave
Miami, FL 33155 USA
Specialties:
Neurology, Genetics, Nutrition, Psychology, Social Work
TO MAKE AN APPOINTMENT:
Contact Emely Ruiz
(786) 624-2380Emely.Ruiz@Nicklaushealth.org
223 East 34th Street
New York, NY 10016 USA
Specialties:
Epilepsy, Psychiatry, Neuropsychology, Nutrition, Gastroenterology, Speech Pathology/Rehabilitation Services
TO MAKE AN APPOINTMENT:
3020 Children’s Way
San Diego, CA 92123 USA
TO MAKE AN APPOINTMENT:
Marlene Uriarte
CLINICAL TRIALS:
Contact: Lynne Bird, MD – lbird@rchsd.org
4650 Sunset Boulevard
Los Angeles, CA 90027
Specialties:
Neurology, Genetics, Psychology, Speech Therapy, Social Work
TO MAKE AN APPOINTMENT:
Note: A referral may be required for insurance purposes.
See information on how to get a referral.
1725 W Harrison Street, Suite 710
Chicago, IL 60612 USA
Specialties:
Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology
TO MAKE AN APPOINTMENT:
Katie Kudlacz
CLINICAL TRIALS:
Ionis Halos | Roche Tangelo | Ultragenyx/Genetx KIK-AS
Contact: Kathryn Kudlacz – kathryn_l_kudlacz@rush.edu
6701 Fannin Street
Houston, TX 77030 USA
Specialties:
Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology
TO MAKE AN APPOINTMENT:
(832) 822-2100Select #3 for “all other clinics”
geneticsappointments@texaschildrens.org
REFERRALS:
New patient referrals may be faxed to 832-824-7333. Please allow 72 hours for referral processing prior to contacting the clinic to schedule.
CLINICAL TRIALS:
Ionis Halos | Roche Tangelo
Contact: Beverly Feldman – bfeldman@bcm.edu
1825 4th Street
San Francisco, CA 94158 USA
Specialties:
Epilepsy, Movement Disorders, Development and Behavior Issues, Sleep Disorders
TO MAKE AN APPOINTMENT:
New Patients:
Contact Raquel Guillen
Existing Patients:
Contact Maria Papadakis
101 Renee Lynne Court
Carrboro, NC 27510 USA
Specialties:
Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work
TO MAKE AN APPOINTMENT:
Notes: Complete the CIDD Angelman/Dup15q Intake Form
CLINICAL TRIALS
Ionis Halos | Roche Tangelo
Contact: Hannah Riehl – hannah.riehl@cidd.unc.edu
2200 Children’s Way
Nashville, TN 37232 USA
Specialties:
Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work
TO MAKE AN APPOINTMENT:
1320 York Avenue
New York, NY 10021 USA
Specialties:
Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition
TO MAKE AN APPOINTMENT:
Contact Nisia Need
Buerger Center for Advanced Pediatric Care
3500 Civic Center Boulevard
Philadelphia, PA 19104
Specialties:
Neurology, Genetics and Social Work. Available by referral: Developmental Medicine, Nutrition, Sleep, GI, Occupational Therapy, Speech Therapy, Physical Therapy
TO MAKE AN APPOINTMENT:
Holly Dubbs, MS, CGC
ASF CLINIC HOURS:
Second Thursday of the month
9am-12pm
801 N. Broadway
Baltimore, MD 21205 USA
Specialties:
Neurology & Neurodevelopment Medicine, Genetics, Speech Language Pathology, Physical/Occupational Therapy, Social Work
TO MAKE AN APPOINTMENT:
Contact Angela Tanner
2401 Gillham Road
Kansas City, MO 64108
Specialties:
Neurology, Psychiatry, Psychology, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Therapy, Occupational Therapy and Social Work
TO MAKE AN APPOINTMENT:
Monique Franklin, BSN, RN
Fax: 816-855-1962
14080 Hospital Road
Boys Town, NE 68010
Specialties:
Genetics, Neurology, Sleep, Psychology, Gastroenterology and Nutrition
TO MAKE AN APPOINTMENT:
Mykala Keil, RN, BSN
Children’s Health Specialty Center
2350 N Stemmons Fwy
Dallas, TX 75207
Specialties:
Epileptologist, Psychiatry, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Medicine and Rehabilitation, Social Work and School Services
TO MAKE AN APPOINTMENT:
Jeremy Fields, MBA, BSN, RN
(214) 456-2768 Select Epilepsy
Making Connections To Improve Quality Of Life
Each ASF Clinic is comprehensive, yet has its own unique capabilities that leverage the expertise and specialized care available from each partnering location. At ASF Clinics, you’ll have access to a variety of professionals specializing in care for those with Angelman syndrome.
Find a clinic below and click More Info for details.
ASF CLINIC DIRECTORY
| ASF Clinic Locations | Location | Specialties | |
|---|---|---|---|
| Boston Children's Hospital | Boston, MA | Genetics, Neurology, Developmental Pediatrics, Psychology, Sleep, Gastroenterology, Orthopedics *LADDER Database Site, Clinical Trial Site |
More Info |
| Boys Town National Research Hospital | Boys Town, NE | Genetics, Neurology, Sleep, Psychology, Gastroenterology and Nutrition | More Info |
| Children's Health Dallas | Dallas, TX | Epileptologist, Psychiatry, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Medicine and Rehabilitation, Social Work and School Services | More Info |
| Children's Hospital Colorado | Aurora, CO | Genetics, Neurology, Developmental Pediatrics, Diet and nutrition, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work, Speech Therapy
*AS Center of Excellence, LADDER Database Site |
More Info |
| Children's Hospital Los Angeles | Los Angeles, CA | Neurology, Genetics, Psychology, Speech Therapy, Social Work *Dup15q Center of Excellence, LADDER Database Site |
More Info |
| Children’s Hospital of Eastern Ontario | Ottawa, Ontario | Neurology, Developmental Pediatrics, Genetics, Psychology | More Info |
| Children's Hospital of Philadelphia | Philadelphia, PA | Neurology, Genetics and Social Work | More Info |
| Children's Mercy Kansas City | Kansas City, MO | Neurology, Psychiatry, Psychology, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Therapy, Occupational Therapy and Social Work | More Info |
| Geisinger Autism & Developmental Medicine Institute | Lewisburg, PA | Developmental Assessments, Psychological and Educational Testing, Speech Evaluations, Genetic Counseling, Medication Management, Neurology, Behavior | More Info |
| Kennedy Krieger Institute | Baltimore, MD | Neurology & Neurodevelopment Medicine, Genetics, Speech Language Pathology, Physical/Occupational Therapy, Social Work | More Info |
| Massachusetts General Hospital | Boston, MA | Neurology, Epilepsy, Psychiatry, Neuro-Psychology, Gastroenterology, Sleep *AS Center of Excellence, Dup15q Center of Excellence, LADDER Database Site |
More Info |
| Mayo Clinic | Rochester, MN | Clinical Genomics, Epilepsy, Sleep, Speech therapy, Behavioral, Physical Medicine | More Info |
| Minnesota Epilepsy Group | St. Paul, MN | Neurology, Neuropsychological Testing, Psychiatry | More Info |
| Nicklaus Children's Hospital | Miami, FL | Neurology, Genetics, Nutrition, Psychology, Social Work | More Info |
| NYU Langone Health | New York, NY | Epilepsy, Psychiatry, Neuropsychology, Nutrition, Gastroenterology, Speech Pathology/Rehabilitation Services | More Info |
| Rady Children's Hospital San Diego | San Diego, CA | *Clinical Trial Site | More Info |
| Rush University Medical Center | Chicago, IL | Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology *AS Center of Excellence, LADDER Database Site, Clinical Trial Site |
More Info |
| Texas Children's Hospital | Houston, TX | Genetics, Neurology, Physical Medicine & Rehabilitation, Developmental Pediatrics *Clinical Trial Site |
More Info |
| UCSF Benioff Children's Hospital | San Francisco, CA | Epilepsy, Movement Disorders, Development and Behavior Issues, Sleep Disorders *LADDER Database Site |
More Info |
| UNC Carolina Institute for Developmental Disabilities | Carrboro, NC | Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work *AS Center of Excellence, Dup15q Center of Excellence, LADDER Database Site, Clinical Trial Site |
More Info |
| Vanderbilt University Medical Center | Nashville, TN | Pediatric Neurology, Sleep Neurology, Nutrition, SLP Services – AAC Device Focus *LADDER Database Site |
More Info |
| Weill Cornell Medicine | New York, NY | Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition | More Info |
Boston Children's Hospital
Location: Boston, MA
Specialties: Genetics, Neurology, Developmental Pediatrics, Psychology, Sleep, Gastroenterology, Orthopedics
*LADDER Database Site, Clinical Trial Site
Boys Town National Research Hospital
Location: Boys Town, NE
Specialties: Genetics, Neurology, Sleep, Psychology, Gastroenterology and Nutrition
Children's Health Dallas
Location: Dallas, TX
Specialties: Epileptologist, Psychiatry, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Medicine and Rehabilitation, Social Work and School Services
Children's Hospital Colorado
Location: Aurora, CO
Specialties: Genetics, Neurology, Developmental Pediatrics, Diet and nutrition, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work, Speech Therapy
*AS Center of Excellence, LADDER Database Site
Children's Hospital Los Angeles
Location: Los Angeles, CA
Specialties: Neurology, Genetics, Psychology, Speech Therapy, Social Work
*Dup15q Center of Excellence, LADDER Database Site
Children’s Hospital of Eastern Ontario
Location: Ottawa, Ontario
Specialties: Neurology, Developmental Pediatrics, Genetics, Psychology
Children's Hospital of Philadelphia
Location: Philadelphia, PA
Specialties: Neurology, Genetics and Social Work
Children's Mercy Kansas City
Location: Kansas City, MO
Specialties: Neurology, Psychiatry, Psychology, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Therapy, Occupational Therapy and Social Work
Geisinger Autism & Developmental Medicine Institute
Location: Lewisburg, PA
Specialties: Developmental Assessments, Psychological and Educational Testing, Speech Evaluations, Genetic Counseling, Medication Management, Neurology, Behavior
Kennedy Krieger Institute
Location: Baltimore, MD
Specialties: Neurology & Neurodevelopment Medicine, Genetics, Speech Language Pathology, Physical/Occupational Therapy, Social Work
Massachusetts General Hospital
Location: Boston, MA
Specialties: Neurology, Epilepsy, Psychiatry, Neuro-Psychology, Gastroenterology, Sleep
*AS Center of Excellence, Dup15q Center of Excellence, LADDER Database Site
Mayo Clinic
Location: Rochester, MN
Specialties: Clinical Genomics, Epilepsy, Sleep, Speech therapy, Behavioral, Physical Medicine
Minnesota Epilepsy Group
Location: St. Paul, MN
Specialties: Neurology, Neuropsychological Testing, Psychiatry
Nicklaus Children's Hospital
Location: Miami, FL
Specialties: Neurology, Genetics, Nutrition, Psychology, Social Work
NYU Langone Health
Location: New York, NY
Specialties: Epilepsy, Psychiatry, Neuropsychology, Nutrition, Gastroenterology, Speech Pathology/Rehabilitation Services
Rady Children's Hospital San Diego
Location: San Diego, CA
Specialties: *Clinical Trial Site
Rush University Medical Center
Location: Chicago, IL
Specialties: Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology
*AS Center of Excellence, LADDER Database Site, Clinical Trial Site
Texas Children's Hospital
Location: Houston, TX
Specialties: Genetics, Neurology, Physical Medicine & Rehabilitation, Developmental Pediatrics
*Clinical Trial Site
UCSF Benioff Children's Hospital
Location: San Francisco, CA
Specialties: Epilepsy, Movement Disorders, Development and Behavior Issues, Sleep Disorders
*LADDER Database Site
UNC Carolina Institute for Developmental Disabilities
Location: Carrboro, NC
Specialties: Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work
*AS Center of Excellence, Dup15q Center of Excellence, LADDER Database Site, Clinical Trial Site
Vanderbilt University Medical Center
Location: Nashville, TN
Specialties: Pediatric Neurology, Sleep Neurology, Nutrition, SLP Services – AAC Device Focus
*LADDER Database Site
Weill Cornell Medicine
Location: New York, NY
Specialties: Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition
NEED HELP FINDING A CLINIC?
Angelman Syndrome Foundation is dedicated to assisting families with clinic visits and clinical trials, as well as answering questions about clinic services, procedures and any other concerns. Contact us today.
