FIND AN ASF CLINIC

Clinics give patients unprecedented access to the highest quality, evidence-based medical care, customized to their needs. Visit one of our worldwide locations.

Children's Hospital Colorado

13123 East 16th Avenue
Aurora, CO 80045

Specialties:

Genetics, Neurology, Developmental Pediatrics, Diet and nutrition, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work

TO MAKE AN APPOINTMENT:

Saraya Sampson

(720) 777-1942

Chromosome15Clinic@childrenscolorado.org

Notes: A referral may be required for insurance purposes. 

Referrals can be faxed to (720) 777-7974.

Boston Children's Hospital

300 Longwood Avenue
Boston, MA 02115

Specialties:

Neurology, Developmental Pediatrics, Psychology, Sleep, Gastroenterology, Orthopedics

TO MAKE AN APPOINTMENT:

Johnna O’Sullivan

(617) 919-4800

Johnna.OSullivan@childrens.harvard.edu

Children’s Hospital of Eastern Ontario

401 Smyth Road
Ottawa ON K1H8L1 Canada

Specialties:

Neurology, Developmental Pediatrics, Genetics, Psychology

TO MAKE AN APPOINTMENT:

Phone: (613) 737-7600 Ext. 2158

Geisinger Autism & Developmental Medicine Institute

120 Hamm Drive
Lewisburg, PA 17837

Specialties:

Developmental Assessments, Psychological and Educational Testing, Genetic Counseling, Medication Management, Neurology, Behavior

TO MAKE AN APPOINTMENT:

Becky Smith
(570) 551-6968
rsmith6@geisinger.edu

Massachusetts General Hospital

Yawkey Center for Outpatient Care
55 Fruit Street, Suite 6B
Boston, MA 02114

Specialties:

Neurology, Epilepsy, Psychiatry, Neuro-Psychology, Gastroenterology, Sleep

TO MAKE AN APPOINTMENT:

Call (617) 726-6540

Consulting Physicians:

Call (617) 726-2177

Mayo Clinic

200 First Street SW
Rochester, MN 55905

Specialties:

Clinical Genomics, Epilepsy, Sleep, Speech Therapy, Behavior, Physical Medicine

TO MAKE AN APPOINTMENT:

Central Appointment Office: (507) 284-8198 | (507) 266-7472
Referring Physicians: (800) 533-1564 or refer a patient here

Appointments take place mostly in one building.

Minnesota Epilepsy Group

2720 Fairview Avenue North

Suite 100
St. Paul, MN 55113

Specialties:

Neurology, Neuropsychological Testing, Psychiatry

TO MAKE AN APPOINTMENT:

(651) 241-5290

Nicklaus Children's Hospital

3100 S.W. 62nd Ave
Miami, FL 33155 USA

Specialties:

Genetics, Nutrition, Psychology, Social Work

TO MAKE AN APPOINTMENT:

Contact Claudia Vargas
(786) 624-2154Claudia.Vargas@Nicklaushealth.org

NYU Langone Health

223 East 34th Street
New York, NY 10016 USA

Specialties:

Epilepsy, Psychiatry, Neuropsychology, Nutrition, Gastroenterology, Speech Pathology/Rehabilitation Services

TO MAKE AN APPOINTMENT:

(646) 558-0800

Rady Children's Hospital San Diego

3020 Children’s Way
San Diego, CA 92123 USA

TO MAKE AN APPOINTMENT:

Marlene Uriarte

(858) 966-6459

Children's Hospital Los Angeles

4650 Sunset Boulevard

Los Angeles, CA 90027

Specialties:

Neurology, Genetics, Psychology, Speech Therapy, Social Work

TO MAKE AN APPOINTMENT:

Phone: (323) 361-2471

Notes: Referral may be required for insurance purposes.

For more information on how to get a referral, please visit www.chla.org/refer-patient.

Rush University Medical Center

1725 W Harrison Street, Suite 710
Chicago, IL 60612 USA

Specialties:

Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology

TO MAKE AN APPOINTMENT:

Contact Katie Kudlacz
(312) 563-9473

Texas Children's Hospital

6701 Fannin Street
Houston, TX 77030 USA

Specialties:

Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology

TO MAKE AN APPOINTMENT:

(832) 822-4298

UCSF Benioff Children's Hospital

1825 4th Street
San Francisco, CA 94158 USA

Specialties:

Epilepsy, Movement Disorders, Development and Behavior Issues, Sleep Disorders

TO MAKE AN APPOINTMENT:

New Patients: 

Contact Raquel Guillen

(415) 353-8862

Raquel.Guillen@ucsf.edu

Existing Patients:

Contact Maria Papadakis

(415) 502-5487

Maria.Papadakis@ucsf.edu

UNC Carolina Institute for Developmental Disabilities

101 Renee Lynne Court
Carrboro, NC 27510 USA

Specialties:

Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work

TO MAKE AN APPOINTMENT:

(919) 966-5171

angelman@cidd.unc.edu

Notes: Complete the CIDD Angelman/Dup15q Intake Form

Vanderbilt University Medical Center

2200 Children’s Way
Nashville, TN 37232 USA

Specialties:

Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work

TO MAKE AN APPOINTMENT:

(615) 936-2769

Weill Cornell Medicine

1320 York Avenue
New York, NY 10021 USA

Specialties:

Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition

TO MAKE AN APPOINTMENT:

Contact Nisia Need

(212) 746-3278

Making Connections To Improve Quality Of Life

Each ASF Clinic is comprehensive, yet has its own unique capabilities that leverage the expertise and specialized care available from each partnering location. At ASF Clinics, you’ll have access to a variety of professionals specializing in care for those with Angelman syndrome.

Find a clinic below and click More Info for details.

ASF CLINIC DIRECTORY

ASF Clinic Locations Location Specialties
Boston Children's Hospital Boston, MA Genetics, Neurology, Developmental Pediatrics, Psychology, Sleep, Gastroenterology, Orthopedics
Children's Hospital Colorado Aurora, CO Genetics, Neurology, Developmental Pediatrics, Diet and nutrition, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work
Children's Hospital Los Angeles Los Angeles, CA Neurology, Genetics, Psychology, Speech Therapy, Social Work
Children’s Hospital of Eastern Ontario Ottawa, Ontario Neurology, Developmental Pediatrics, Genetics, Psychology
Geisinger Autism & Developmental Medicine Institute Lewisburg, PA Developmental Assessments, Psychological and Educational Testing, Genetic Counseling, Medication Management, Neurology, Behavior
Massachusetts General Hospital Boston, MA Neurology, Epilepsy, Psychiatry, Neuro-Psychology, Gastroenterology, Sleep
Mayo Clinic Rochester, MN Clinical Genomics, Epilepsy, Sleep, Speech therapy, Behavioral, Physical Medicine
Minnesota Epilepsy Group St. Paul, MN Neurology, Neuropsychological Testing, Psychiatry
Nicklaus Children's Hospital Miami, FL Genetics, Nutrition, Psychology, Social Work
NYU Langone Health New York, NY Epilepsy, Psychiatry, Neuropsychology, Nutrition, Gastroenterology, Speech Pathology/Rehabilitation Services
Rady Children's Hospital San Diego San Diego, CA
Rush University Medical Center Chicago, IL Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology
Texas Children's Hospital Houston, TX Genetics, Neurology, Physical Medicine & Rehabilitation, Developmental Pediatrics
UCSF Benioff Children's Hospital San Francisco, CA Epilepsy, Movement Disorders, Development and Behavior Issues, Sleep Disorders
UNC Carolina Institute for Developmental Disabilities Carrboro, NC Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work
Vanderbilt University Medical Center Nashville, TN Pediatric Neurology, Sleep Neurology, Nutrition, SLP Services – AAC Device Focus
Weill Cornell Medicine New York, NY Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition

Boston Children's Hospital

Location: Boston, MA

Specialties: Genetics, Neurology, Developmental Pediatrics, Psychology, Sleep, Gastroenterology, Orthopedics

Children's Hospital Colorado

Location: Aurora, CO

Specialties: Genetics, Neurology, Developmental Pediatrics, Diet and nutrition, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work

Children's Hospital Los Angeles

Location: Los Angeles, CA

Specialties: Neurology, Genetics, Psychology, Speech Therapy, Social Work

Children’s Hospital of Eastern Ontario

Location: Ottawa, Ontario

Specialties: Neurology, Developmental Pediatrics, Genetics, Psychology

Geisinger Autism & Developmental Medicine Institute

Location: Lewisburg, PA

Specialties: Developmental Assessments, Psychological and Educational Testing, Genetic Counseling, Medication Management, Neurology, Behavior

Massachusetts General Hospital

Location: Boston, MA

Specialties: Neurology, Epilepsy, Psychiatry, Neuro-Psychology, Gastroenterology, Sleep

Mayo Clinic

Location: Rochester, MN

Specialties: Clinical Genomics, Epilepsy, Sleep, Speech therapy, Behavioral, Physical Medicine

Minnesota Epilepsy Group

Location: St. Paul, MN

Specialties: Neurology, Neuropsychological Testing, Psychiatry

Nicklaus Children's Hospital

Location: Miami, FL

Specialties: Genetics, Nutrition, Psychology, Social Work

NYU Langone Health

Location: New York, NY

Specialties: Epilepsy, Psychiatry, Neuropsychology, Nutrition, Gastroenterology, Speech Pathology/Rehabilitation Services

Rady Children's Hospital San Diego

Location: San Diego, CA

Rush University Medical Center

Location: Chicago, IL

Specialties: Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology

Texas Children's Hospital

Location: Houston, TX

Specialties: Genetics, Neurology, Physical Medicine & Rehabilitation, Developmental Pediatrics

UCSF Benioff Children's Hospital

Location: San Francisco, CA

Specialties: Epilepsy, Movement Disorders, Development and Behavior Issues, Sleep Disorders

UNC Carolina Institute for Developmental Disabilities

Location: Carrboro, NC

Specialties: Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work

Vanderbilt University Medical Center

Location: Nashville, TN

Specialties: Pediatric Neurology, Sleep Neurology, Nutrition, SLP Services – AAC Device Focus

Weill Cornell Medicine

Location: New York, NY

Specialties: Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition

NEED HELP FINDING A CLINIC?

Angelman Syndrome Foundation is dedicated to assisting families with clinic visits and clinical trials, as well as answering questions about clinic services, procedures and any other concerns. Contact us today.