FIND AN ASF CLINIC

Clinics give patients unprecedented access to the highest quality, evidence-based medical care, customized to their needs. Visit one of our worldwide locations.

Children's Hospital Colorado

13123 East 16th Avenue
Aurora, CO 80045

Specialties:

Genetics, Neurology, Developmental Pediatrics, Diet and Nutrition, Gastrointestinal Care, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work, Speech Therapy, Sleep

TO MAKE AN APPOINTMENT:

Christina Gross, RN

(720) 777-1942

Chromosome15Clinic@childrenscolorado.org

New patients can call, email or complete the New Patient Form, to initiate scheduling process.

Notes: A referral may be required for insurance purposes. 

Referrals can be faxed to (720) 777-7974.

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Boston Children's Hospital

300 Longwood Avenue
Boston, MA 02115

Specialties:

Neurology, Developmental Pediatrics, Psychology, Sleep, Gastroenterology, Orthopedics

TO MAKE AN APPOINTMENT:

Lotus Lichty

(617) 919-2536

Lotus.Lichty@childrens.harvard.edu

CLINICAL TRIALS:

Ionis Halos
Contact: Monica Ciaffi- Monica.Ciaffi@childrens.harvard.edu

Roche Aldebaran
Contact: Batsheva Friedman – Batsheva.Friedman@childrens.harvard.edu

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Children’s Hospital of Eastern Ontario

401 Smyth Road
Ottawa ON K1H8L1 Canada

Specialties:

Neurology, Developmental Pediatrics, Genetics, Psychology

TO MAKE AN APPOINTMENT:

Phone: (613) 737-7600 Ext. 2158

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Geisinger Autism & Developmental Medicine Institute

120 Hamm Drive
Lewisburg, PA 17837

Specialties:

Developmental Assessments, Psychological and Educational Testing, Genetic Counseling, Medication Management, Neurology, Behavior

TO MAKE AN APPOINTMENT:

 

(570) 522-6287

bahaasgivlar@geisinger.edu

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Massachusetts General Hospital

Yawkey Center for Outpatient Care
55 Fruit Street, Suite 6B
Boston, MA 02114

Specialties:

Genetics, Neurology, Epilepsy, Psychiatry, Neuro-Psychology, Gastroenterology, Diet, Sleep, Occupational Therapy, Physical Therapy, Social Work

TO MAKE AN APPOINTMENT:

Call (617) 726-6540

Consulting Physicians:

Call (617) 726-2177

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Mayo Clinic

200 First Street SW
Rochester, MN 55905

TO MAKE AN APPOINTMENT:

Central Appointment Office: (507) 284-8198 | (507) 266-7472
Referring Physicians: (800) 533-1564 or refer a patient here

Appointments take place mostly in one building.

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Minnesota Epilepsy Group

2720 Fairview Avenue North

Suite 100
Roseville, MN 55113

Specialties:

Genetics, Neurology, Neuropsychological Testing, Psychiatry

TO MAKE AN APPOINTMENT:

(651) 241-5290

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Nicklaus Children's Hospital

3100 S.W. 62nd Ave
Miami, FL 33155 USA

Specialties:

Neurology, Genetics, Nutrition, Psychology, Social Work

TO MAKE AN APPOINTMENT:

Contact Emely Ruiz (via email is preferred)
Emely.Ruiz@Nicklaushealth.org(786) 624-2380

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NYU Langone Health

223 East 34th Street
New York, NY 10016 USA

Specialties:

Genetics, Neurology, Developmental Pediatrics, Psychiatry, Nutrition, Gastroenterology, Speech Pathology/Rehabilitation Services, Occupational Therapy, Physical Therapy, Social Work

TO MAKE AN APPOINTMENT:

(646) 558-0800

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Rady Children's Hospital San Diego

3020 Children’s Way
San Diego, CA 92123 USA

TO MAKE AN APPOINTMENT:

Marlene Uriarte

(858) 966-6459

CLINICAL TRIALS:

Ionis Halos | Roche Tangelo

Contact: Lynne Bird, MD – lbird@rchsd.org

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Children's Hospital Los Angeles

4650 Sunset Boulevard

Los Angeles, CA 90027

Specialties:

Neurology, Genetics, Psychology, Speech Therapy, Social Work

TO MAKE AN APPOINTMENT:

(323) 361-5996

jesteNDDclinic@chla.usc.edu

Note: A referral may be required for insurance purposes.

See information on how to get a referral

 

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Rush University Medical Center

1725 W Harrison Street, Suite 710
Chicago, IL 60612 USA

Specialties:

Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology

TO MAKE AN APPOINTMENT:

Katie Kudlacz

Kathryn_L_Kudlacz@rush.edu

CLINICAL TRIALS:

Ionis HalosRoche Tangelo | Ultragenyx/Genetx KIK-AS
Contact: Kathryn Kudlacz – kathryn_l_kudlacz@rush.edu

 

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Texas Children's Hospital

6701 Fannin Street
Houston, TX 77030 USA

Specialties:

Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology

TO MAKE AN APPOINTMENT:

(832) 822-2100Select #3 for “all other clinics”

geneticsappointments@texaschildrens.org

REFERRALS:

New patient referrals may be faxed to 832-824-7333. Please allow 72 hours for referral processing prior to contacting the clinic to schedule.

CLINICAL TRIALS:

Ionis HalosRoche Tangelo 
Contact: Beverly Feldman – bfeldman@bcm.edu

 

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UCSF Benioff Children's Hospital

1825 4th Street
San Francisco, CA 94158 USA

Specialties:

Genetics, Neurology and Psychology/Psychiatry

TO MAKE AN APPOINTMENT:

(855) 722-8273 Press 1 for San Francisco location

PBC@ucsf.edu

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UNC Carolina Institute for Developmental Disabilities

101 Renee Lynne Court
Carrboro, NC 27510 USA

Specialties:

Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Rehabilitation Medicine, Social Work

TO MAKE AN APPOINTMENT:

(919) 966-5171

angelman@cidd.unc.edu

Notes: Complete the CIDD Angelman/Dup15q Intake Form

CLINICAL TRIALS

Ionis Halos |  Roche Tangelo
Contact: Hannah Riehl – hannah.riehl@cidd.unc.edu

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Cincinnati Children’s Hospital

Cincinnati Children’s Hospital 
5642 Hamilton Ave
Cincinnati, OH 45224

Specialties:

Genetics, Neurology, Developmental Pediatrics, Diet & Nutrition, Sleep, Gastrointestinal, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work/Family Support, Speech Therapy, Psychology/Psychiatry

TO MAKE AN APPOINTMENT: 

Kim Buxton

(513) 636-6553Select Option 3

 

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Vanderbilt University Medical Center

2200 Children’s Way
Nashville, TN 37232 USA

Specialties:

Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Social Work

TO MAKE AN APPOINTMENT:

(615) 936-2769

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Weill Cornell Medicine

1320 York Avenue
New York, NY 10021 USA

Specialties:

Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition

TO MAKE AN APPOINTMENT:

Contact Nisia Need

(212) 746-3278

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Children's Hospital of Philadelphia

Buerger Center for Advanced Pediatric Care
3500 Civic Center Boulevard
Philadelphia, PA 19104

Specialties:

Neurology, Genetics, Occupational Therapy, Physical Therapy and Social Work. Available by referral: Developmental Medicine, Nutrition, Sleep, GI, Speech Therapy

TO MAKE AN APPOINTMENT: 

Holly Dubbs, MS, CGC

(215) 590-1719

 

ASF CLINIC HOURS:

Second Thursday of the month
9am-12pm

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Kennedy Krieger Institute

801 N. Broadway
Baltimore, MD 21205 USA

Specialties:

Neurology & Neurodevelopment Medicine, Genetics, Speech Language Pathology, Physical and Occupational Therapy

TO MAKE AN APPOINTMENT:

Contact Angela Tanner

(443) 923-7955Tanneran@kennedykrieger.org

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Children's Mercy Kansas City

2401 Gillham Road
Kansas City, MO 64108

Specialties:

Neurology, Psychiatry, Psychology, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Therapy, Occupational Therapy and Social Work

TO MAKE AN APPOINTMENT: 

Monique Franklin, BSN, RN

(816) 302-8073

AngelmanSyndrome@cmh.edu

Fax: 816-855-1962

 

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Boys Town National Research Hospital

14080 Hospital Road
Boys Town, NE  68010

Specialties:

Genetics, Neurology and Social Work. Sleep, Psychology, Gastroenterology and Nutrition available by referral.

TO MAKE AN APPOINTMENT:

Mykala Keil, RN, BSN

(531) 355-7420

neurologyclinic@boystown.org

 

See more details about this clinic

 

Children's Health Dallas

Children’s Health Specialty Center
2350 N Stemmons Fwy
Dallas, TX 75207

Specialties:

Epileptologist, Psychiatry, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Medicine and Rehabilitation, Social Work and School Services

TO MAKE AN APPOINTMENT: 

Jeremy Fields, MBA, BSN, RN

(214) 456-2768 Select Epilepsy

AngelmanClinic@childrens.com

See more details about this clinic.

Cedars-Sinai Guerin Children’s

8723 Alden Dr. Suite 240.
Los Angeles, CA 90048

Specialties:

Behavioral Therapy, Genetics, Gastrointestinal, Neurology, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Orthopedics, Sleep, Speech, Diet & Nutrition and Social Work

TO MAKE AN APPOINTMENT: 

(310) 423-7779

Or complete an online intake form.

ASF Clinic Hours:

Second Tuesday of every month
8am – 3pm

 

See details about this clinic

BC Children’s Hospital

4500 Oak Street
Vancouver, BC V6H 3N1

Specialties:

Genetics, Neurology, Developmental Pediatrics, Diet & Nutrition, Sleep, Gastrointestinal, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work/Family Support, Speech Therapy, Psychology/Psychiatry

TO MAKE AN APPOINTMENT:

(604)-875-2486

Montréal Children’s Hospital

1001 Décarie Boulevard
Montreal, Quebec H4A 3J1, Canada

Specialties:

Neurology and Genetics

TO MAKE AN APPOINTMENT:

(514)-412-4445

glen.neuro.clin@muhc.mcgill.ca

Making Connections To Improve Quality Of Life

Each ASF Clinic is comprehensive, yet has its own unique capabilities that leverage the expertise and specialized care available from each partnering location. At ASF Clinics, you’ll have access to a variety of professionals specializing in care for those with Angelman syndrome.

Find a clinic below and click More Info for details.

ASF CLINIC DIRECTORY

ASF Clinic Locations Location Specialties
BC Children’s Hospital Vancouver, BC Genetics, Neurology, Developmental Pediatrics, Diet & Nutrition, Sleep, Gastrointestinal, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work/Family Support, Speech Therapy, Psychology/Psychiatry
Boston Children's Hospital Boston, MA Genetics, Neurology, Developmental Pediatrics, Psychology, Sleep, Gastroenterology, Orthopedics
*LADDER Database Site, Clinical Trial Site
Boys Town National Research Hospital Boys Town, NE Genetics, Neurology and Social Work
Cedars-Sinai Guerin Children’s Los Angeles, CA Behavioral Therapy, Genetics, Gastrointestinal, Neurology, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Orthopedics, Sleep, Speech, Diet & Nutrition and Social Work
Children's Health Dallas Dallas, TX Epileptologist, Psychiatry, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Medicine and Rehabilitation, Social Work and School Services
Children's Hospital Colorado Aurora, CO Genetics, Neurology, Developmental Pediatrics, Diet and Nutrition, Gastrointestinal Care, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work, Speech Therapy, Sleep
*AS Center of Excellence, LADDER Database Site
Children's Hospital Los Angeles Los Angeles, CA Neurology, Genetics, Psychology, Speech Therapy, Social Work
*Dup15q Center of Excellence, LADDER Database Site
Children’s Hospital of Eastern Ontario Ottawa, Ontario Neurology, Developmental Pediatrics, Genetics, Psychology
Children's Hospital of Philadelphia Philadelphia, PA Neurology, Genetics, Physical Therapy, Occupational Therapy and Social Work
Children's Mercy Kansas City Kansas City, MO Neurology, Psychiatry, Psychology, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Therapy, Occupational Therapy and Social Work
Cincinnati Children’s Hospital Cincinnati, OH Genetics, Neurology, Developmental Pediatrics, Diet & Nutrition, Sleep, Gastrointestinal, Rehabilitation Medicine, Occupational Therapy, Social Work/Family Support, Psychology/Psychiatry
Geisinger Autism & Developmental Medicine Institute Lewisburg, PA Developmental Assessments, Psychological and Educational Testing, Speech Evaluations, Genetic Counseling, Medication Management, Neurology, Behavior
Kennedy Krieger Institute Baltimore, MD Genetics, Neurology & Neurodevelopment Medicine, Genetics, Psychology
Massachusetts General Hospital Boston, MA Genetics, Neurology, Epilepsy, Psychiatry, Neuro-Psychology, Gastroenterology, Diet, Sleep, Occupational Therapy, Physical Therapy, Social Work
*AS Center of Excellence, Dup15q Center of Excellence, LADDER Database Site
Mayo Clinic Rochester, MN Genetics, Neurology, Sleep, Speech Therapy, Rehabilitation Medicine, Psychology/Psychiatry
Minnesota Epilepsy Group St. Paul, MN Genetics, Neurology, Neuropsychological Testing, Psychiatry
Montréal Children’s Hospital Montréal, Quebec Neurology and Genetics
Nicklaus Children's Hospital Miami, FL Neurology, Genetics, Nutrition, Psychology, Social Work
NYU Langone Health New York, NY Genetics, Neurology, Developmental Pediatrics, Psychiatry, Diet & Nutrition, Gastroenterology, Sleep, Speech Pathology/Rehabilitation Services, Occupational Therapy, Physical Therapy, Social Work
Rady Children's Hospital San Diego San Diego, CA Neurology, Pediatric Orthopedics, Diet, Gastrointestinal Medicine, Occupational Therapy, Physical Therapy, Speech Therapy, Developmental Psychology *Clinical Trial Site
Rush University Medical Center Chicago, IL Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology
*AS Center of Excellence, LADDER Database Site, Clinical Trial Site
Texas Children's Hospital Houston, TX Genetics, Neurology, Physical Medicine & Rehabilitation, Developmental Pediatrics
*Clinical Trial Site
UCSF Benioff Children's Hospital San Francisco, CA Genetics, Neurology and Psychology/Psychiatry
*LADDER Database Site
UNC Carolina Institute for Developmental Disabilities Carrboro, NC Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Rehabilitation Medicine, Social Work
*AS Center of Excellence, Dup15q Center of Excellence, LADDER Database Site, Clinical Trial Site
Vanderbilt University Medical Center Nashville, TN Pediatric Neurology, Sleep Neurology, Nutrition, SLP Services – AAC Device Focus
*LADDER Database Site
Weill Cornell Medicine New York, NY Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition

BC Children’s Hospital

Location: Vancouver, BC

Specialties: Genetics, Neurology, Developmental Pediatrics, Diet & Nutrition, Sleep, Gastrointestinal, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work/Family Support, Speech Therapy, Psychology/Psychiatry

Boston Children's Hospital

Location: Boston, MA

Specialties: Genetics, Neurology, Developmental Pediatrics, Psychology, Sleep, Gastroenterology, Orthopedics
*LADDER Database Site, Clinical Trial Site

Boys Town National Research Hospital

Location: Boys Town, NE

Specialties: Genetics, Neurology and Social Work

Cedars-Sinai Guerin Children’s

Location: Los Angeles, CA

Specialties: Behavioral Therapy, Genetics, Gastrointestinal, Neurology, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Orthopedics, Sleep, Speech, Diet & Nutrition and Social Work

Children's Health Dallas

Location: Dallas, TX

Specialties: Epileptologist, Psychiatry, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Medicine and Rehabilitation, Social Work and School Services

Children's Hospital Colorado

Location: Aurora, CO

Specialties: Genetics, Neurology, Developmental Pediatrics, Diet and Nutrition, Gastrointestinal Care, Rehabilitation Medicine, Occupational Therapy, Physical Therapy, Social Work, Speech Therapy, Sleep
*AS Center of Excellence, LADDER Database Site

Children's Hospital Los Angeles

Location: Los Angeles, CA

Specialties: Neurology, Genetics, Psychology, Speech Therapy, Social Work
*Dup15q Center of Excellence, LADDER Database Site

Children’s Hospital of Eastern Ontario

Location: Ottawa, Ontario

Specialties: Neurology, Developmental Pediatrics, Genetics, Psychology

Children's Hospital of Philadelphia

Location: Philadelphia, PA

Specialties: Neurology, Genetics, Physical Therapy, Occupational Therapy and Social Work

Children's Mercy Kansas City

Location: Kansas City, MO

Specialties: Neurology, Psychiatry, Psychology, GI, Genetics, Orthopedics, Ophthalmology, Speech, Nutrition, Physical Therapy, Occupational Therapy and Social Work

Cincinnati Children’s Hospital

Location: Cincinnati, OH

Specialties: Genetics, Neurology, Developmental Pediatrics, Diet & Nutrition, Sleep, Gastrointestinal, Rehabilitation Medicine, Occupational Therapy, Social Work/Family Support, Psychology/Psychiatry

Geisinger Autism & Developmental Medicine Institute

Location: Lewisburg, PA

Specialties: Developmental Assessments, Psychological and Educational Testing, Speech Evaluations, Genetic Counseling, Medication Management, Neurology, Behavior

Kennedy Krieger Institute

Location: Baltimore, MD

Specialties: Genetics, Neurology & Neurodevelopment Medicine, Genetics, Psychology

Massachusetts General Hospital

Location: Boston, MA

Specialties: Genetics, Neurology, Epilepsy, Psychiatry, Neuro-Psychology, Gastroenterology, Diet, Sleep, Occupational Therapy, Physical Therapy, Social Work
*AS Center of Excellence, Dup15q Center of Excellence, LADDER Database Site

Mayo Clinic

Location: Rochester, MN

Specialties: Genetics, Neurology, Sleep, Speech Therapy, Rehabilitation Medicine, Psychology/Psychiatry

Minnesota Epilepsy Group

Location: St. Paul, MN

Specialties: Genetics, Neurology, Neuropsychological Testing, Psychiatry

Montréal Children’s Hospital

Location: Montréal, Quebec

Specialties: Neurology and Genetics

Nicklaus Children's Hospital

Location: Miami, FL

Specialties: Neurology, Genetics, Nutrition, Psychology, Social Work

NYU Langone Health

Location: New York, NY

Specialties: Genetics, Neurology, Developmental Pediatrics, Psychiatry, Diet & Nutrition, Gastroenterology, Sleep, Speech Pathology/Rehabilitation Services, Occupational Therapy, Physical Therapy, Social Work

Rady Children's Hospital San Diego

Location: San Diego, CA

Specialties: Neurology, Pediatric Orthopedics, Diet, Gastrointestinal Medicine, Occupational Therapy, Physical Therapy, Speech Therapy, Developmental Psychology *Clinical Trial Site

Rush University Medical Center

Location: Chicago, IL

Specialties: Neurology, Developmental-Behavioral Medicine, Sleep Medicine, Gastroenterology, Genetic Counseling, Psychology, Psychiatry, Speech Language Pathology, Rehabilitation Medicine, Physical Therapy, Occupational Therapy, Pulmonology
*AS Center of Excellence, LADDER Database Site, Clinical Trial Site

Texas Children's Hospital

Location: Houston, TX

Specialties: Genetics, Neurology, Physical Medicine & Rehabilitation, Developmental Pediatrics
*Clinical Trial Site

UCSF Benioff Children's Hospital

Location: San Francisco, CA

Specialties: Genetics, Neurology and Psychology/Psychiatry
*LADDER Database Site

UNC Carolina Institute for Developmental Disabilities

Location: Carrboro, NC

Specialties: Genetics, Neurology, Psychiatry, Psychology, Speech and Language Pathology, Occupational and Physical Therapy, Rehabilitation Medicine, Social Work
*AS Center of Excellence, Dup15q Center of Excellence, LADDER Database Site, Clinical Trial Site

Vanderbilt University Medical Center

Location: Nashville, TN

Specialties: Pediatric Neurology, Sleep Neurology, Nutrition, SLP Services – AAC Device Focus
*LADDER Database Site

Weill Cornell Medicine

Location: New York, NY

Specialties: Pediatric Medicine, Neurology, Genetics, Psychiatry, Psychology, Speech Language Pathology, Physical/Occupational Therapy, Social Work, Nutrition

NEED HELP FINDING A CLINIC?

Angelman Syndrome Foundation is dedicated to assisting families with clinic visits and clinical trials, as well as answering questions about clinic services, procedures and any other concerns. Contact us today.