Events

Angelman Syndrome Congressional Advocacy Day

Angelman Syndrome Congressional Advocacy Day

March 6 - 7, 2024 Washington DC

Co-hosted by FAST and ASF

This advocacy opportunity is open to parents, caregivers, grandparents, and friends of individuals living with Angelman syndrome who are willing to educate Congressional leaders and staffers to ensure that Angelman syndrome, while a rare disease, is forefront in their minds.

As we advance potential treatments for Angelman syndrome, it is vitally important that we educate Congressional leaders and their staffs about what Angelman syndrome is, and the effect that an accessible treatment will have on the lives of our loved ones living with AS.

On March 6, you will attend a thorough training session to ensure you are well-prepared for your meetings with legislators that happen on March 7.

See an FAQ more more information.