Angelman Strong

Join the Angelman Community in 40 locations across the US. Whether a walk, 5K, or community event, Angelman Strong is continuing the legacy of connection and support started by the ASF Walks. 

Saturday, May 17 in most locations

Find one near you and register to support & celebrate individuals with Angelman syndrome. 

What is Angelman syndrome and the Angelman Syndrome Foundation?

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TESTIMONIALS

IN THE NEWS

Latest press releases, articles and announcements

April 15, 2025

Oak Hill Bio Obtain Global Rights for Rugonersen

In June 2023, Roche announced they would not be moving forward with a clinical trial for rugonersen, an investigational ASO for AS, and would be looking for an external partner to take over the development.  Oak Hill Bio has entered […]

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February 10, 2025

Community Advisory Board

Introducing the Angelman Syndrome Global Community Advisory Board (CAB)  As we prepare for International Angelman Day, we are thrilled to introduce the Angelman Syndrome Global Community Advisory Board (CAB)! This remarkable group of parent advocates and expert parents/carers has come […]

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December 19, 2024

First Patient(s) Dosed in Ultragenyx Phase 3 Aspire Study

Ultragenyx Pharmaceutical Inc. announced today that the first patient(s) has/have been dosed in the pivotal Phase 3 Aspire study evaluating the efficacy and safety of GTX-102, its investigational antisense oligonucleotide (ASO) for Angelman syndrome. Check clinicaltrials.gov for recruitment status and participation criteria. […]

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Thank You Angelman Strong Partners!

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