A new network platform, Linking Angelman and Dup15q Data for Expanded Research (LADDER), will offer caregivers access to information about a larger population of patients living with Angelman or Dup15 syndromes to better inform their decisions regarding treatments and interventions. […]Read more
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Since her diagnosis, we have relied on the Angelman Syndrome Foundation as a source of information and support.
The Angelman Syndrome Clinic at MGH is a blessing for my adult child. Now we have somebody who really understand our needs.
Amazing things have happened because of the ASF-funded LGIT study from Boston’s MassGeneral Hospital. It was the beginning of a new era for treatments for our children with AS.
IN THE NEWS
Latest press releases, articles and announcements
Angelman Syndrome Foundation and Dup15q Alliance Announce Development of the International Clinical Research Network in efforts to help those living with 15q syndromes. Thousands of families affected by Angelman syndrome (AS) and dup15q syndrome will soon have greater access to […]Read more
A UNC Healthcare announced on September 17, 2019: The National Institutes of Health have awarded two separate grants totaling $6.1 million to Mark Zylka, PhD, director of the UNC Neuroscience Center.at the UNC School of Medicine. One of these projects […]Read more
An ASF funded research study was published in BioRXiv and the Journal of Clinical Investigation. See the press release below for more information and the outcomes of the study. UNC School of Medicine researchers led by Ben Philpot, PhD, and Bin Gu, PhD, found that […]Read more