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Since her diagnosis, we have relied on the Angelman Syndrome Foundation as a source of information and support.
The Angelman Syndrome Clinic at MGH is a blessing for my adult child. Now we have somebody who really understand our needs.
Amazing things have happened because of the ASF-funded LGIT study from Boston’s MassGeneral Hospital. It was the beginning of a new era for treatments for our children with AS.
Latest press releases, articles and announcements
Today the Canadian Angelman Syndrome Society (CASS) and the Angelman Syndrome Foundation (ASF) announced that the two charities will collaborate with a shared goal of increasing research and support to Angelman syndrome (AS) families. United, the organizations will have the […]
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Deerfield and Pinnacle Hill have partnered with Dr, Ben Philpot, UNC Chapel Hill, to advance a new therapeutic for AS! Their work focuses on manipulating gene expression and this collaboration will accelerate work previously funded by the ASF to the […]
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ASF Funded Research leads to a collaboration for gene therapy to correct deficiency in UBE3A gene Asklepios BioPharmaceutical, Inc. (AskBio), a leading clinical-stage adeno-associated virus (AAV) gene therapy company, entered into a research collaboration and licensing agreement with the […]
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Coronavirus Disease 2019 (COVID-19) Questions and Answers (FAQs) Due to quickly evolving information, recommendations may be subject to change and will be updated as needed. The 15q Clinical Research Network has prepared these FAQs to address concerns from the Angelman/Dup15q […]
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