– The Waibel Family
“At the ASF Clinic, Emily benefitted from an entirely different level of knowledge and professionalism. She saw a team of doctors, therapists and other specialists who focus on caring for kids with AS. They gave Emily a new seizure medication and developed a care plan to reduce her seizures and aid her development.
Emily went from only taking a couple steps to walking all over the clinic and our house! She hasn’t had a seizure since November 2021. It is a dream come true!”
ASF funded research advance our understanding of AS and increase the potential for treatment & therapeutics.
FIND OUT MORE
Since her diagnosis, we have relied on the Angelman Syndrome Foundation as a source of information and support.
The Angelman Syndrome Clinic at MGH is a blessing for my adult child. Now we have somebody who really understands our needs.
Amazing things have happened because of the ASF-funded LGIT study from Boston’s MassGeneral Hospital. It was the beginning of a new era for treatments for our children with AS.
Latest press releases, articles and announcements
The Angelman Syndrome Foundation is proud to announce their partnership with AngelmanUK to launch new clinics and expand existing clinics to better serve the community in the UK. “AngelmanUK is delighted to collaborate with the Angelman Syndrome Foundation (ASF) on […]
Read more
Angelman Syndrome Foundation (ASF) proudly announces the collaboration with OVID Therapeutics to advance understanding of AS via a contribution of crucial data collected in Ovid’s clinical trial for Angelman syndrome to the LADDER database. “The most important gift that industry […]
Read more The Angelman Syndrome Foundation (ASF) is proud to announce their partnership with families in the United Arab Emirates (UAE) to bring family support and a clinical network to their community. The ASF is a US-based nonprofit organization that has supported […]
Read more
ANGELMAN SYNDROME FOUNDATION TO HOST SCREENING OF UNSEEN: HOW WE’RE FAILING PARENT CAREGIVERS & WHY IT MATTERS Angelman Syndrome Foundation is proud to announce the upcoming screening of Unseen: How We’re Failing Parent Caregivers & Why It Matters, a […]
Read more
