June 21, 2023
Roche has made the difficult decision not to move forward with a new clinical trial for rugonersen and has initiated the search for an external partner to take over the development. The conclusion of this trial undoubtedly brings feelings of […]
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June 19, 2023
AURORA, IL – Angelman Syndrome Foundation (ASF) proudly announces the launch of the Jacob Pritzker Fellowship Program in honor of late board president Fred Pritzker. The Jacob Pritzker Fellowship Program was created to address the ever-increasing need for more physicians who […]
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April 18, 2023
Angelman Syndrome Foundation and Canadian Angelman Syndrome Society Partner to Expand Care for Individuals with Rare Disorder Two organizations leading activism for the rare and severe neuro-genetic disorder Angelman syndrome have entered a partnership to expand their reach. Angelman […]
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January 6, 2023
The Angelman Syndrome Foundation is proud to announce their partnership with Genefund Future Angelman Syndrome (GFAS Ukraine) to launch a new clinic to better serve the community in Ukraine. “Bright people are always visible in dark times. In the most […]
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