ANGELMAN SYNDROME FOUNDATION TO HOST SCREENING OF UNSEEN: HOW WE’RE FAILING PARENT CAREGIVERS & WHY IT MATTERS Angelman Syndrome Foundation is proud to announce the upcoming screening of Unseen: How We’re Failing Parent Caregivers & Why It Matters, a […]Read more
2022 ASF Family Conference & Research Symposium
Join us Augst 2 – 5 in Round Rock, TX for a one-of-a kind experience!
Every other year the ASF holds the Family Conference & Research Symposium to gather families, care providers, therapists, teachers, scientists, researchers and clinicians under one roof to learn and discuss the latest information on Angelman syndrome.
Since her diagnosis, we have relied on the Angelman Syndrome Foundation as a source of information and support.
The Angelman Syndrome Clinic at MGH is a blessing for my adult child. Now we have somebody who really understands our needs.
Amazing things have happened because of the ASF-funded LGIT study from Boston’s MassGeneral Hospital. It was the beginning of a new era for treatments for our children with AS.
IN THE NEWS
Latest press releases, articles and announcements
Angelman Syndrome Foundation and Dup15q Alliance partner to launch the LADDER Learning Network, showing continued dedication to research
Angelman Syndrome Foundation (ASF) and Dup15q Alliance proudly announce their strategic partnership to launch the LADDER Learning Network, a new medical network specifically designed for individuals with Angelman syndrome (AS) and dup15q—two rare disorders affecting the q-arm of the […]Read more
In 2018, the ASF co-funded a feasibility study to test a newborn screening for Angelman syndrome, Prader-Willi syndrome and dup15q syndrome. As always, we thank our generous donors! Your support and belief in the ASF mission makes it possible […]Read more
As part of a 2020 ASF funded study, Ben Philpot, PhD and Matt Judson, PhD at UNC School of Medicine have been developing a gene therapy strategy as a method to restore function of UBE3A. The early results were published […]Read more