On September 23, The Angelman Center brought together around 50 Families at the First National Gathering of families with Angelman syndrome (I Ogólnopolski Zlot Aniołków). The meeting was organized by the families from the Angelman Syndrome Project (Projekt Zespół Angelmana). […]
Read moreRoche has made the difficult decision not to move forward with a new clinical trial for rugonersen and has initiated the search for an external partner to take over the development. The conclusion of this trial undoubtedly brings feelings of […]
Read moreAURORA, IL – Angelman Syndrome Foundation (ASF) proudly announces the launch of the Jacob Pritzker Fellowship Program in honor of late board president Fred Pritzker. The Jacob Pritzker Fellowship Program was created to address the ever-increasing need for more physicians who […]
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Angelman Syndrome Foundation and Canadian Angelman Syndrome Society Partner to Expand Care for Individuals with Rare Disorder Two organizations leading activism for the rare and severe neuro-genetic disorder Angelman syndrome have entered a partnership to expand their reach. Angelman […]
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The Angelman Syndrome Foundation is proud to announce their partnership with Genefund Future Angelman Syndrome (GFAS Ukraine) to launch a new clinic to better serve the community in Ukraine. “Bright people are always visible in dark times. In the most […]
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The Angelman Syndrome Foundation is proud to announce their partnership with AngelmanUK to launch new clinics and expand existing clinics to better serve the community in the UK. “AngelmanUK is delighted to collaborate with the Angelman Syndrome Foundation (ASF) on […]
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Angelman Syndrome Foundation (ASF) proudly announces the collaboration with OVID Therapeutics to advance understanding of AS via a contribution of crucial data collected in Ovid’s clinical trial for Angelman syndrome to the LADDER database. “The most important gift that industry […]
Read more The Angelman Syndrome Foundation (ASF) is proud to announce their partnership with families in the United Arab Emirates (UAE) to bring family support and a clinical network to their community. The ASF is a US-based nonprofit organization that has supported […]
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