WEBINAR: Phase 3 Study of ION582

April 23 at 1PM EST

ASF and FAST will host a webinar about the trial, named REVEAL, with the Ionis team.

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WEBINAR: Adult Resources for Siblings & Caregivers

May 7 @ 8PM EST

Learn about resources and services available for your adult with Angelman syndrome and the plans for more resources coming soon.

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Logan’s Walk-a-thon

May 3, 2025 @ 10:00am Ashland, OH

Walk-a-thon with food and lots of fun and fundraising!

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Angelman Strong

May 17, 2025

Join us for the ASF Walk in over 40 locations across the US!

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Pittsburgh Pirates Game

June 7 @ 3:05PM Pittsburgh, PA

This is a special invitation for those living with Angelman syndrome and up to 3 guests to attend Angelman Day at PNC Park. Limited space is available.

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Bank of America Chicago Marathon 2025

October 12, 2025 Chicago, IL

Join the Windy City Angels running in the Bank of America Chicago Marathon!

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RECORDING: Patient-Focused Drug Development Meeting

April 7. 2025 at 10AM EST

The Patient-focused drug development meeting had 383 participants! With over 227 Angelman syndrome caregivers and family members, 67 industry representatives, 41 FDA staff, and 27 researchers and healthcare providers present. Watch the recording.

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Conference Archives

2023 ASF Virtual Conference

July 8, 2023

The ASF Virtual Conference will bring together renowned experts, researchers, and individuals passionate about Angelman syndrome to share their knowledge, experiences, and strategies for enhancing the lives of those affected by this condition. Whether you're a parent seeking guidance, a caregiver looking for support, or a professional dedicated to improving AS interventions, this event is for you!

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ASF Virtualpalooza

July 27 - August 14, 2020

The first virtual educational conference.

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Family Conference Archives

2015, 2017, 2019, 2022

Information and recaps from in-person family conferences.

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ASF Family Conference 2022

August 2-5, 2022 Round Rock, TX

See session recordings from three 2022 conference sessions. The next in-person ASF Family Conference will be held summer of 2024. Location is TBD.

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Research Symposium Archive

2016 - 2018

Information and recaps from past symposia.

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