A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
See the complete list of topics.
Walking | Weight Gain | What Angels say to their Moms | Wheelchairs | Who’s Who of Angelman Syndrome
Walking
ASF Walk Since the 1999 first inaugural ASF Walk in Naperville, Illinois, this annual ASF event has grown to be the organization’s largest fundraiser and includes close to fifty cities with nearly 10,000 participants.
Angelman Family Contributions
We had great success in teaching our grandson to walk in the swimming pool where the water helped keep him on his feet and legs.
Hardy, grandfather to angel Finn
Our daughter took almost five years to walk. Initially, we were told she would never walk. We insisted and provided her with Physical Therapy sessions during all this and she was literally taught how to crawl, stand up, and walk.
Harold
I wish someone had suggested we get a helmet for our daughter when she started to walk. Everyone was afraid she wouldn’t like the helmet because of her sensory issues, but she loves it! Our PT recommended we try a front walker (instead of a rear walker) and that worked great.
Christine and Giovanni, angel Chiara
Our son started crawling when we started The Philadelphia Method best known as The Doman Method that helped him start the walking process. After creeping, came crawling and then the walking. It took about 3 years for him to learn how to walk. (aged 2 to 5)
Brisia, México, angel Mario
When our angel was learning to walk and felt like he needed us to hold onto, we started putting a hula hoop around him so he could hold the front and we could hold the back to help support and guide him but he learned he didn’t need our hands and fingers but he could feel “safe” with something to hold, plus it seemed fun! This helped him branch out and try on his own!
Andrea, mcneilak98@gmail.com, angel Tyler, age 18, Del+ Class 1
We had great success in teaching our grandson to walk in the swimming pool where the water helped keep him on his feet and legs.
Hardy Zantke, Torrance, CA grandfather of Finn, age 7
Our daughter took almost five years to walk. Initially, we were told she would never walk. We insisted and provided her with Physical Therapy sessions during all this and she was literally taught how to crawl, stand up, and walk.
Harold Mendoza
I wish someone had suggested we get a helmet for our daughter when she started to walk. Everyone was afraid she wouldn’t like the helmet because of her sensory issues, but she loves it! Our PT recommended we try a front walker (instead of a rear walker) and that worked great.
Christine and Giovanni Rompato Logan, Utah angel Chiara, age 5
Our son started crawling when we started The Philadelphia Method best known as The Doman Method that helped him start the walking process. After creeping, came crawling and then the walking. It took about 3 years for him to learn how to walk. (ages 2 to 5)
Brisia Barba Chihuahua, México, angel Mario, age 9
Weight Gain
Overweight / Obesity
- Present in 32% of individuals with AS, with obesity disproportionately affecting women
Angelman Family Contribution
We try to feed our angel more natural foods. He has three meals and two snacks a day.
Brisia, angel Mario
What Angels Say to their Moms
Thanks for never giving up on me. Your comfort and support help me take small steps forward that you might not even see. But, I AM moving forward and I AM truly learning every single day.
Thanks for searching deep inside me for parts that want to emerge. Mom, it is so exciting when a new connection is made between us.
Thanks for being patient when I am having a meltdown or when I am being stubborn. Sometimes I get really frustrated, frightened, anxious or overwhelmed.
Thanks for holding your head up high and being proud of me.
Thanks for working so hard, and I want you to know that I really do appreciate every little thing.
Thanks for telling me you love me. I really do understand. When I give you a hug, I am telling you that I love you more.
I love you to the moon and back, Mom, and I always will.
Wheelchairs
One popular brand: Quickie https://www.quickie-wheelchairs.com/
Wheelchairs can be covered under your child’s insurance plan. The physician can write a prescription and then you will be contacted by a vendor.
*** Transport Chairs are very lightweight and are great for short distance (airport, malls, etc.).
Who’s Who of the Angelman Syndrome Foundation
See About ASF to see the ASF staff members.
See the Board of Directors.
See the Scientific Advisory Committee.
See the Communication Advisory Committee.
See ASF Funded Research to see who has an is currently performing research on AS.
A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
