Angelman Syndrome Foundation and Canadian Angelman Syndrome Society Partner to Expand Care for Individuals with Rare Disorder Two organizations leading activism for the rare and severe neuro-genetic disorder Angelman syndrome have entered a partnership to expand their reach. Angelman […]
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ANGELMAN SYNDROME FOUNDATION TO HOST SCREENING OF UNSEEN: HOW WE’RE FAILING PARENT CAREGIVERS & WHY IT MATTERS Angelman Syndrome Foundation is proud to announce the upcoming screening of Unseen: How We’re Failing Parent Caregivers & Why It Matters, a […]
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Angelman Syndrome Foundation (ASF) and Dup15q Alliance proudly announce their strategic partnership to launch the LADDER Learning Network, a new medical network specifically designed for individuals with Angelman syndrome (AS) and dup15q—two rare disorders affecting the q-arm of the […]
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In 2018, the ASF co-funded a feasibility study to test a newborn screening for Angelman syndrome, Prader-Willi syndrome and dup15q syndrome. As always, we thank our generous donors! Your support and belief in the ASF mission makes it possible […]
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FAST, the Foundation for Angelman Syndrome Therapeutics, and ASF, the Angelman Syndrome Foundation, announce a collaboration for a legislative working group focused on furthering the awareness and treatment of Angelman syndrome through legislative advocacy. The legislative working group will continue […]
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