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ASF and Angelman UK Partner to Expand Family Support

Angelman UK and ASF Working Together for Angelman Families
October 4, 2021

ASF and Angelman UK Partner to Expand Family Support

The Angelman Syndrome Foundation and Angelman UK announce a new partnership that will increase support to Angelman syndrome families. Angelman UK will fund eligible ASF Family Fund applicants located in the United Kingdom. Angelman UK joins the Canadian Angelman Syndrome Society (CASS) as partners with the ASF in this venture.

“Angelman UK is excited to be working collaboratively with the ASF,” said Rachel Martin, Chairperson of Angelman UK. “Both organisations have a long history of sharing the same goal: to support the Angelman community to the best of our ability. Working together along with CASS, this new venture will make a significant difference to our UK families and will reinforce positive international networks at a time when the community needs us to work together.”

The ASF Family Fund was created in 2019 to provide financial assistance to families supporting individuals with Angelman syndrome. Twice a year, family members can apply for funding for things like communication devices, adaptive play items and safety equipment that would help improve the quality of life of an individual with AS. In two years, the ASF Family Fund has granted over $260,000.

“At the Angelman Syndrome Foundation we believe that when we collaborate and work together, we can make a bigger impact to support families on their AS journey. The ASF is very proud of the ASF Family Fund and the impact it has had so far on the AS community. We are thrilled to have Angelman UK partner with us. Their involvement will amplify the support we are able to give to AS families from diagnosis to cure and beyond.” Amanda Moore, CEO of the Angelman Syndrome Foundation.