Current Research Studies

Project Wellcast

Project Wellcast

This NIH-funded research study aims to understand how to best support caregivers of children with rare neurogenetic conditions via telehealth. Eligible participants may receive free resources, evidence-based treatments by trained therapists, and/or peer-to-peer coaching by other rare disorder caregivers.


Participants are asked to complete forms and questionnaires about their experiences and are compensated up to $100 for their time.  

Please note: Because this is a research study, participants do not select which type of support they will receive. All resources are evidence-based and accessible from home, without any travel. Participants may stop the study at any time without penalty. 



  • Caregiver (age 18+) of an individual ages 2-35
  • Individual must have a documented neurogenetic condition typically associated with intellectual disability and/or developmental delays; condition may not be neurodegenerative in nature
  • Caregiver must reside in the US and be fluent in English
  • Additional eligibility criteria may apply.


More Information & To Participate

More information can be found on the study website

Send questions or interest in participation to 



The Angelman Syndrome Foundation does not endorse any clinical trial or study, but provides information to the AS community for its own consideration.