January 6, 2023
The Angelman Syndrome Foundation is proud to announce their partnership with Genefund Future Angelman Syndrome (GFAS Ukraine) to launch a new clinic to better serve the community in Ukraine. “Bright people are always visible in dark times. In the most […]
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December 8, 2022
Research Investigates Health Issues in Adults with Angelman Syndrome Dr. Ron Thibert, the well-known Angelman syndrome clinician and champion of the low-glycemic index dietary seizure treatment, and Dr. Anna Larson, both of Massachusetts General Hospital, published the findings from their clinical […]
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September 21, 2022
The Angelman Syndrome Foundation is proud to announce their partnership with AngelmanUK to launch new clinics and expand existing clinics to better serve the community in the UK. “AngelmanUK is delighted to collaborate with the Angelman Syndrome Foundation (ASF) on […]
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September 2, 2022
Angelman Syndrome Foundation (ASF) proudly announces the collaboration with OVID Therapeutics to advance understanding of AS via a contribution of crucial data collected in Ovid’s clinical trial for Angelman syndrome to the LADDER database. “The most important gift that industry […]
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August 18, 2022
The Angelman Syndrome Foundation (ASF) is proud to announce their partnership with families in the United Arab Emirates (UAE) to bring family support and a clinical network to their community. The ASF is a US-based nonprofit organization that has supported […]
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June 21, 2022
ANGELMAN SYNDROME FOUNDATION TO HOST SCREENING OF UNSEEN: HOW WE’RE FAILING PARENT CAREGIVERS & WHY IT MATTERS Angelman Syndrome Foundation is proud to announce the upcoming screening of Unseen: How We’re Failing Parent Caregivers & Why It Matters, a […]
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March 8, 2022
Angelman Syndrome Foundation (ASF) and Dup15q Alliance proudly announce their strategic partnership to launch the LADDER Learning Network, a new medical network specifically designed for individuals with Angelman syndrome (AS) and dup15q—two rare disorders affecting the q-arm of the […]
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November 2, 2021
In 2018, the ASF co-funded a feasibility study to test a newborn screening for Angelman syndrome, Prader-Willi syndrome and dup15q syndrome. As always, we thank our generous donors! Your support and belief in the ASF mission makes it possible […]
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