Stories, comments, insights

ASF Blog

October 8, 2020

Duck Race in Denver

A few months ago, Stacey Davis and some friends discussed hosting an event to bring their community together and support a charity. Little did Stacey know that her friends decided they wanted to honor the Davis family and their 19-year-old […]

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September 18, 2020

Hope and Empowerment through Advocacy for a Father

Curtis Hanson and his wife, Kristen, are parents to two incredible girls Kaia, 6 and Emma, 4. Both of their daughters have an Angelman syndrome diagnosis of UBE3A mutation. When they received the diagnosis, Curtis said it felt like “so […]

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September 18, 2020

27 hours of Crossfit for Cameron

In 2018, John ‘Scotty’ Mace a former member of the Royal Australian Air Force, started a 24 Hour CrossFit Challenge in honor of son Cameron while stationed at Buckley Airforce Base in Denver, CO.  While in Colorado, working in Defense […]

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June 10, 2020

Family from Peru finds Angelman family in Minnesota

Written by: Kim Rossow & Mapy Estupiñan Perez   Greetings from Minnesota!  I’m Kim Rossow, an ASF Family Champion in Minnesota.  It is both my personal and professional passion to connect with families and support parents in navigating their new […]

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May 13, 2020

Determined to be Resilient

Is isolation starting to wear on you?  Have you found yourself okay one day, and then struggling with new emotions and stress the next?  I know I have – and I’m a positive, happy person by nature!  So, feeling this […]

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March 30, 2020

Tips for Staying at Home

ASF Resource Team Member, Michelle Harvey shares some tips and ideas for staying at home with an individual with AS.    Quarantine/At-Home Edition! The first thing WE often do when we get to work is check our calendar and see […]

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January 1, 2020

2019 Wrap up

It is hard to believe that it has only been 7 months since I started my role at the Angelman Syndrome Foundation. Time flies when you are working to kick AS! One of the first things I set out to […]

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