Stories, comments, insights

ASF Blog

January 2, 2022

2021 Year in Review

What a year it has been for our community! As I reflect back on 2021, I am filled with mixed emotions. On one hand, it has been such an amazing year for the ASF and the community when it comes […]

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November 12, 2021

International 15q Day

November 15th is International 15q Day.  Angelman, Prader-Willi, and Dup15q syndromes are all distinct neurodevelopmental disorders that are caused by changes within the specific q11 to q13 region of chromosome 15 (called 15q). This region contains a number of important […]

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August 5, 2021

Sibling Spotlight: Jackson Walden

    Jackson Walden, and his twin brother Grady, who is diagnosed with AS, are 6 years old. Jackson is always Grady’s biggest cheerleader and knows how to help and love on Grady!    What is your favorite memory with […]

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July 14, 2021

Behind the Smiles Documentary

  Emily Ray tells the story of her son’s journey to diagnosis in “Behind the Smiles,” winner of Best Documentary at SAE Institute’s Black Sheep Film Festival in Dubai, January 2021.  Emily and Sam live in Dubai, and Sam recently […]

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June 4, 2021

Sibling Spotlight: Mathew Perry

    Mathew Perry is the older brother of Evin, who is diagnosed with AS.   What is your favorite memory with Evin?  My favorite memory together is taking Evin on zoo trips, just the two of us. We called […]

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May 14, 2021

Sibling Spotlight: Lesley McCallister

  Lesley McCallister is the proud sister of Kate McCullough (del+), who was diagnosed with Angelman syndrome in 1989. Lesley’s family has been involved with the Angelman Syndrome Foundation since its inception. She has been a frequent volunteer and speaker […]

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April 23, 2021

How To Secure Insurance Coverage for a Safety Bed

This blog and links to supplemental information was provided by Abram’s Nation, a platinum sponsor of the 2021 ASF Walk.   Each state can be different, so it is important to know the insurance requirements before submitting your request for coverage. Here is […]

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April 6, 2021

Sibling Spotlight: Henry Grover

Henry is 10 years old and is from Indiana. He loves hot wheels, baseball, scouts, making crafts, watching YouTube and being with his Granny and Hoho and his Nana and Papa. His parents Marisa and JJ Grover are active members […]

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