Mathew Perry is the older brother of Evin, who is diagnosed with AS. What is your favorite memory with Evin? My favorite memory together is taking Evin on zoo trips, just the two of us. We called […]
Read moreLesley McCallister is the proud sister of Kate McCullough (del+), who was diagnosed with Angelman syndrome in 1989. Lesley’s family has been involved with the Angelman Syndrome Foundation since its inception. She has been a frequent volunteer and speaker […]
Read moreThis blog and links to supplemental information was provided by Abram’s Nation. Each state can be different, so it is important to know the insurance requirements before submitting your request for coverage. Here is one family’s story. After seven months and […]
Read moreHenry is 10 years old and is from Indiana. He loves hot wheels, baseball, scouts, making crafts, watching YouTube and being with his Granny and Hoho and his Nana and Papa. His parents Marisa and JJ Grover are active members […]
Read moreA message about the year 2020 from the Angelman Syndrome Foundation.
Read moreA few months ago, Stacey Davis and some friends discussed hosting an event to bring their community together and support a charity. Little did Stacey know that her friends decided they wanted to honor the Davis family and their 19-year-old […]
Read moreCurtis Hanson and his wife, Kristen, are parents to two incredible girls Kaia, 6 and Emma, 4. Both of their daughters have an Angelman syndrome diagnosis of UBE3A mutation. When they received the diagnosis, Curtis said it felt like “so […]
Read moreIn 2018, John ‘Scotty’ Mace a former member of the Royal Australian Air Force, started a 24 Hour CrossFit Challenge in honor of son Cameron while stationed at Buckley Airforce Base in Denver, CO. While in Colorado, working in Defense […]
Read more