I am so grateful to be able to share our story with you. It starts out probably very similar to yours. It was Nathan’s seizures that led us to his Angelman syndrome diagnosis. Over 80% of individuals with AS develop epilepsy. […]
Read moreWhat a year it has been for our community! As I reflect back on 2021, I am filled with mixed emotions. On one hand, it has been such an amazing year for the ASF and the community when it comes […]
Read moreNovember 15th is International 15q Day. Angelman, Prader-Willi, and Dup15q syndromes are all distinct neurodevelopmental disorders that are caused by changes within the specific q11 to q13 region of chromosome 15 (called 15q). This region contains a number of important […]
Read moreJackson Walden, and his twin brother Grady, who is diagnosed with AS, are 6 years old. Jackson is always Grady’s biggest cheerleader and knows how to help and love on Grady! What is your favorite memory with […]
Read moreEmily Ray tells the story of her son’s journey to diagnosis in “Behind the Smiles,” winner of Best Documentary at SAE Institute’s Black Sheep Film Festival in Dubai, January 2021. Emily and Sam live in Dubai, and Sam recently […]
Read moreMathew Perry is the older brother of Evin, who is diagnosed with AS. What is your favorite memory with Evin? My favorite memory together is taking Evin on zoo trips, just the two of us. We called […]
Read moreLesley McCallister is the proud sister of Kate McCullough (del+), who was diagnosed with Angelman syndrome in 1989. Lesley’s family has been involved with the Angelman Syndrome Foundation since its inception. She has been a frequent volunteer and speaker […]
Read moreThis blog and links to supplemental information was provided by Abram’s Nation. Each state can be different, so it is important to know the insurance requirements before submitting your request for coverage. Here is one family’s story. After seven months and […]
Read more