Henry is 10 years old and is from Indiana. He loves hot wheels, baseball, scouts, making crafts, watching YouTube and being with his Granny and Hoho and his Nana and Papa. His parents Marisa and JJ Grover are active members […]
Read moreA message about the year 2020 from the Angelman Syndrome Foundation.
Read moreA few months ago, Stacey Davis and some friends discussed hosting an event to bring their community together and support a charity. Little did Stacey know that her friends decided they wanted to honor the Davis family and their 19-year-old […]
Read moreCurtis Hanson and his wife, Kristen, are parents to two incredible girls Kaia, 6 and Emma, 4. Both of their daughters have an Angelman syndrome diagnosis of UBE3A mutation. When they received the diagnosis, Curtis said it felt like “so […]
Read moreIn 2018, John ‘Scotty’ Mace a former member of the Royal Australian Air Force, started a 24 Hour CrossFit Challenge in honor of son Cameron while stationed at Buckley Airforce Base in Denver, CO. While in Colorado, working in Defense […]
Read moreWritten by: Kim Rossow & Mapy Estupiñan Perez Greetings from Minnesota! I’m Kim Rossow, an ASF Family Champion in Minnesota. It is both my personal and professional passion to connect with families and support parents in navigating their new […]
Read moreIs isolation starting to wear on you? Have you found yourself okay one day, and then struggling with new emotions and stress the next? I know I have – and I’m a positive, happy person by nature! So, feeling this […]
Read moreASF Resource Team Member, Michelle Harvey shares some tips and ideas for staying at home with an individual with AS. Quarantine/At-Home Edition! The first thing WE often do when we get to work is check our calendar and see […]
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